I made a big mistake tonight and left Dick alone while I went to the store and when I returned he was trapped in the chair all twisted. He dropped the chair remote and tried to pick it up and got trapped. He is paralyzed in both arms. I thought I could leave him for short trips but we learned a lesson and luckily nothing was broken. I have him on the bipap in the day now also and it helps but he does pant which is new for him. Having breathing difficulties is scary for us. The ALS doctor ordered a cough assist machine for him and our pulmonologist here does not want him to use it because of the force. It is an awkard situation to be in. Also wondered if anyone has bought adaptive clothing and does it work well. Example would be snaps down the back on shirts etc. Everything is just getting a little harder with dressing him etc. I feel like you are becoming my friends. Also, I heard there is a phone and you say "answer" and it answers the phone for someone who can't use their arms. Anyone familiar with that?
Thanks for being there.
Phyl
Thanks for being there.
Phyl