Soreness/weakness.

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JustTrying

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I am still in the process of diagnosed, but I have some definite left hand weakness and loss of dexterity. When I try and use it, it gets so sore. Same with my neck. Sore. The left hand and mouth/neck/tongue are the sites of all day fasciculations.

I was just wondering if you take OTC medication? Does it help? This is so different than having a sore muscle from a workout or strain, so I wasn't sure if anything helps.

Thanks
 
Heating pad is my best friend. Occasionally Advil.

On another note, I'm concerned about you. This is your 10th thread in a very short time. It's challenging to follow your story - suggest you try to keep questions/comments etc on one or two threads - but maybe I'm the only one who thinks so.

I'm concerned especially because in one recent post, you reported decent news about your EMG results. I appreciate you are worried ( who wouldn't be?), but are you perhaps a tad too focused on every twitch, tic, cramp? Everyone has those. They don't have ALS.

I am by no means dismissing your concerns, or dis-respecting you. So please, take this in the spirit in which it is offered. I have often observed that so many threads is often indicative that the DIHALS person should be receiving extra help and care from their GP to get through the frustrating diagnosis process. Anxiety is real and can wreak havoc on your physical self, emotional self and relationships. Totally screwing up your life, if left unchecked. Maybe you felt the neuro did not provide an explanation - why not ask your GP request a comprehensive report from the neuro? Maybe there's something you missed - appointments with neuros are in themselves intimidating. ( was for me)

Stress, anxiety and lack of sleep can, and do, exacerbate symptoms ( I speak from experience), so it's crucial that you try to step away from the Internet for a bit and re-group until your Boston appointment, which as best I can figure, is in a couple of weeks?

Wishing you calmness.
 
Thanks for replying. I have to admit I belong to a couple forums in which people post frequently and create many new
threads, so I may be carrying that mindset with me here.

Believe me, I am trying hard to ignore what is going on with me but it's so difficult when I can't do the things I could a few months ago. My 5 year old asked me to open something for her and I couldn't :( and I can't carry her :( and these damn twitches keep reminding me something is wrong. I know I shouldn't complain, but I don't have anyone else to discuss this with. I imagine everyone here was in limbo at some point. Didn't you feel frustrated? Sad? Did you have someone to discuss your mood or body changes with that didn't dismiss or chalk it up to anxiety or your diet? That's where I am. I'm just here for support.

My appt is on July 9th with an ALS specialist and I am scared, anxious but also hopeful for an answer.
 
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