Does anyone go to the ALS clinic at MGH in Boston?

[JustTrying]

I have to get a couple more tests done and paperwork in order, but I am going to make an appt. there next month, if they will take me that soon.

Is there a particular doctor you like?

Thank you.

 

[Nikki J]

My sister sees Merit Cudkowicz. She is great. I also know someone who sees James Berry and likes him too. And the other doctor whose name begins with A can't remember it just now Atassi?Also heard positive things about him. If you can get a referral I would call for an appointment as soon as possible as it usually takes a while to get in
Good luck
Nikki

 

[samsmom]

My dad was just diagnosed there. He sees Dr. David, who is in charge of the EMG lab. You might want to start with him if you're just getting diagnosed. I have also heard good things about Dr. Atassi. I agree with Nikki, get the referral ASAP, because it took several weeks to get in. The only thing that I don't like is that the patient has to move from room to room and it gets fatiguing. At Lahey I hear that the patient stays in one exam room and the clinicians move around.

 

[JustTrying]

I have an appt with Dr Berry in two weeks. the head doctor was too busy with patients. I am going to ask for a more thorough EMG this time, now that I have a better sense of what I am looking at. Also, my weakness has gotten worse as has the fasiculations, so I bet the EMG will show more.

Thanks everyone for replying!