ambulanceman
New member
- Joined
- May 10, 2013
- Messages
- 2
- Reason
- CALS
- Country
- US
- State
- CO
- City
- Brighton
My Mother-in-law has been suffering from Bulbar ALS since January of 2011. Symptoms started slow with a bit of slurred speech and have progressed to the point where she is now having significant difficulty eating due to salivation and inability to chew. In addition we have noticed a loss of control in her neck muscles and she struggles to hold up her head. A few weeks ago she started developing pain in her joints and is beginning to have significant balance issues. On top of that she struggles with sleep or getting quality sleep.
My wife tries to take her to the ALS clinic but she is now all but refusing to go and has refused any measures which would help her (feeding tube, c-pap and so on). I guess what I am saying is we're at a loss what to do or how to help her or how to convince her to seek the help that she needs. Neither my wife or I are naive (we both have backgrounds in emergency medicine as family care) and we know what is coming and are prepared to provide what care we can until it is beyond our capabilities. Any advice or insight you would have would be welcome.
My wife tries to take her to the ALS clinic but she is now all but refusing to go and has refused any measures which would help her (feeding tube, c-pap and so on). I guess what I am saying is we're at a loss what to do or how to help her or how to convince her to seek the help that she needs. Neither my wife or I are naive (we both have backgrounds in emergency medicine as family care) and we know what is coming and are prepared to provide what care we can until it is beyond our capabilities. Any advice or insight you would have would be welcome.