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EJTUNow

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Joined
Mar 25, 2013
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28
Reason
Learn about ALS
Country
US
State
North Carolina
City
Carteret
PALS DIY Cooperative
checking to see if there is any interest in forming a PALS DIY Cooperative?
-we would collectively nominate a total of 20 therapies, off label drugs, supplements, vitamins.
-hire a PhD contractor
-members would receive a phone call or submit an email update every two weeks answering a simple question along the lines of better, same, worse.
-We would provide links for self directed individual research
-provide approximate dosage recommendations and sources.
-Fully transparent financial details and decision-making.
-initial funding will be based on 30 members at $100 each or 20 members at 150 dollars each.
We'd need two or three energetic committed leaders. Four hours per week over the next 30 days.
Posting this same note on three or four forums to test the waters
 
so each person would only use one therapy for a month? they would not be anything currently being tested by the FDA or any research hospitals? only supplements and vitamins?
 
who has open acess to off lable drugs. many drugs has serious side effects who does the blood testing
 
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