sisters
New member
- Joined
- Apr 30, 2013
- Messages
- 1
- Reason
- Loved one DX
- Country
- US
- State
- Indiana
- City
- waynetown
I'm not sure how this works. My sister has ALS and has been diagnost for 3 years now. She is now in a nursing home being cared for by hospis at this point. Pain management. My sister and i have been very close close growing up. I was there from begining when she found out she had ALS. I use to help in her home at the begining. Im a small person only 4"9 so It got to were i was unable to do much. Now that she is at the nursing home i was going to be there for her alot. Some time has past and she has got worse little more each week. I feel so guilty because i know it is hard on her and she must feel alone most of the time. Each week i go to see her it gets harder not to break down and cry in front of her. But i have held together face to face. We was so close and best friends still are. But to see her that way each week getting little worse i having hard time seeing her like that. I push to go of course because though i feel bad inside and hurts not even close to how she must be feeling. She having trouble eating and hard time staying awake. Im looseing my only sister and im not sure how to take it how to feel so many feelings at once. She has 3 young boys 9 to 13. A husband that loves her more then anything in this world. It was my mom and my sister and me for long time. So my sister and my mom is everything. I just at point im speechless with her almost i sit and stare and watch tv with her. I can still make out words she trys to say on good days. I just love her so much. And i have prayed and prayed that i wont have to loose her. I dont know how to help her or what to say or how to cope with what is now happening. I guess i just kept telling myself she would get better. I never really read up on ALS till recently because i was in such denile even though i seen what was going on slowly but now shes got to the point where shes got pretty bad fast. Im sry i just feel selfish. Talking about how am i gonna handle it. Plz give me advice. What can i do? How do i help make things easier for her?