@PEARSHOOT:
Oh, that hurts. That hurts me a lot very deeply, Pearshoot. It's also scary.
Could this be (I said COULD) one of the many reasons why the discovery of a cure for this disease has been delayed and postponed for ages?
So, you said that out of nearly 21,000 members registered here, only you and I would be among the few ones attending to the ALS awareness metting at D.C. this May? Is that right?
And, also you said I was the only one who confirmed my attendance to this meeting, on the thread your started for that purpose. Wow! I don't know what to say, man.
If we, as PALS, do not show awareness to the world about our own illness, how can we expect the healthy "John Doe" and the healthy "Jane Doe" on the street, who have not an inch of clue what Amyothropic Lateral Sclerosis (ALS) is are going to become aware of it?
I was remembering an old thread I read here started by the late "TRFOGEY", titled: "Why so little research interest from forum users?". You would be surprised with the answers he got.
I have seen more awareness among Cancer or AIDS sufferers than us, PALS.
They also have a very strong lobby in Congress and with the Government. Stronger than ours.
Is it that the Cancer/AIDS lobby are more litigious and the ALS sufferer is resigned to his/her fate? Who knows?
(I am crossing fingers to not make some fellow PALS in here mad at me and jump on me and judge me and crucify me just because of this post).
NH