EJTUNow
Member
- Joined
- Mar 25, 2013
- Messages
- 28
- Reason
- Learn about ALS
- Country
- US
- State
- North Carolina
- City
- Carteret
Pfizer cancer drug wins special status; shares jump
time for Us to get serious about replacing the word cancer with ALS.
We have many Levers To pull. We just Need Choose a treatment, select the levers, And recruit people willing to pull them.
the last one is simple and Potentially exceedingly effective… Sign up tomorrow afternoon at the latest in order to be heard at 5
here are a few:
-Public relations release
-calls and letters to the FDA and CEO
-outreach during ALS advocacy weekend
-A new petition
-A silent vigil in front of company "a" And in front of the FDA
-Have you tried reaching out to Mark Harrington of TAG? He's continued doing AIDS advocacy work all these years and knows the ins and outs of the FDA/Big Pharma/NIH still. Whereas I left ACT UP at the end of 1991.
Mark said:I'd be happy to have a teleconference (less familiar with video but am sure it can be set up) to discuss these issues and their relevance to ALS.
-get your neurologists on board
-Push Hard on all 4 forums
-sign on to this webinar tomorrow and ask ALS TDI executives for help " we encourage folks to join us live as your questions and interaction with these researchers is incredibly important"
Sign up now to be sure you are heard tomorrow: ALS Webinars | ALS Therapy Development Institute Need several of us to sign up and speak out, that encourages others.
time for Us to get serious about replacing the word cancer with ALS.
We have many Levers To pull. We just Need Choose a treatment, select the levers, And recruit people willing to pull them.
the last one is simple and Potentially exceedingly effective… Sign up tomorrow afternoon at the latest in order to be heard at 5
here are a few:
-Public relations release
-calls and letters to the FDA and CEO
-outreach during ALS advocacy weekend
-A new petition
-A silent vigil in front of company "a" And in front of the FDA
-Have you tried reaching out to Mark Harrington of TAG? He's continued doing AIDS advocacy work all these years and knows the ins and outs of the FDA/Big Pharma/NIH still. Whereas I left ACT UP at the end of 1991.
Mark said:I'd be happy to have a teleconference (less familiar with video but am sure it can be set up) to discuss these issues and their relevance to ALS.
-get your neurologists on board
-Push Hard on all 4 forums
-sign on to this webinar tomorrow and ask ALS TDI executives for help " we encourage folks to join us live as your questions and interaction with these researchers is incredibly important"
Sign up now to be sure you are heard tomorrow: ALS Webinars | ALS Therapy Development Institute Need several of us to sign up and speak out, that encourages others.