Old 03-25-2013, 04:38 PM #1 (permalink)
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Default stem cells,.gene therapy 0 times!, and Gilenya

Iwould suggest to you that ALS TDI Seems to focus mainly on traditional drug therapy.

It might be that drug therapy will become yesterday's solution.

I was on Gilenya for over 3 months with no positive indication, I hope ALS TDI has rolling data reporting so that the trial can be terminated early based on breakthrough results that help patients, or signs of poor results. Remaining dollars might be reallocated for stem cell and gene therapy

in this article On ALSTDI website note that drug, or medicine is mentioned 4 times; stem cells And gene therapy 0 times!

The ABCs of ALS Therapies

More than 100 medicines have been tested as possible treatments for ALS. But only riluzole is FDA-approved: a drug that at best, moderately treats the disease.

A considerable obstacle toward developing more effective treatments for neurologic diseases including ALS is the blood brain and spinal cord barriers which in part, keep certain toxic substances circulating in the blood out of the central nervous system. These cellular-based barriers block potential medicines from getting into the brain and spinal cord. And, drug pumps called ABC transporters installed within these barriers kick drugs that sneak into ALS-ravaged nerves back out into the blood

The ABCs of ALS Therapies | ALS Therapy Development Institute
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Old 03-25-2013, 10:58 PM #2 (permalink)
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Default Re: stem cells,.gene therapy 0 times!, and Gilenya

Hey,

My advice to you would be to post your concerns at their forum (they have one)where it would receive more attention.
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Old 04-02-2013, 04:35 AM #3 (permalink)
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Default Re: stem cells,.gene therapy 0 times!, and Gilenya

ejtunow --- you say you are intrested in learning about als no diagnosed date i take it you do not have it , --- why were you on Gilenya and why would you have any results from it
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Old 04-18-2013, 03:21 PM #4 (permalink)
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Default Re: stem cells,.gene therapy 0 times!, and Gilenya

- Precision StemCell, Neuralgene, and Precision Biologix. Their mission is to provide Advanced ALS therapies.

- Dr. Ko Has joined Dr.Williams. Dr. Ko.previously performed research in the treatment of ALS, which she will be resuming. She will direct the animal studies evaluating efficacy of Neuralgene's PRCN-829 for the treatment of ALS.

- Precision Biologix is a medical treatment and research facility that performs image guided stem cell, gene therapy, tumor vaccine and ablation therapies. Precision Biologix is headed by medical doctors and researchers who are world leaders in the development of image guided biological based therapies. Precision Biologix will merge and incorporate technologies for the treatment of cancer and neurodegenerative disorders using gene therapy and in- vivo tumor vaccine along with the proven treatments of American Cancer Ablation Center and Precision StemCell. These companies will unite their efforts as Precision Biologix. The union of these therapies will allow patients with fatal and untreatable diseases access to cutting edge treatments 10-20 years before their expected approval from regulatory boards such as the FDA. Patients with these diseases do not have time to wait for the approval and development of these treatments by the slow standard process. Patients in todays era are taking more control of their care by researching sources on the internet. Patients often read about these discoveries, but will not live long enough to benefit from these treatment options. Precision Biologix will offer treatment using advanced non- approved, but scientifically back therapies now, without the wait of formal approval. This will satisfy the need for these patients when traditional approved therapies are failing them.
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