alone
New member
- Joined
- Aug 21, 2012
- Messages
- 2
- Reason
- Learn about ALS
- Country
- US
- State
- Colorado
- City
- Avon
I was wondering what patients do before they get diagnosis. Isn't it hell? I mean there are so many other things that mimic ALS and it must cost a lot of money how do people get a diagnosis? I've spent my entire life savings and lost all my family and friends. I have nothing to live for these symtpoms have stolen everything from me. Now diagnosis would only save some face mut my life is over just the same. I've moved out of my homeland so I could live a little longer on the money I have left. I'm no longer able to work but unable to get dissabilty or social security with no diagnosis. They say it's begnin hascilation syndrom but I have muscle atrophy and keep shakeing and insomnia. It's painfull to. I've lost everything. I can't possibly be the only one who has this happen to. Is there anybody out there that has lost everything and still has no diagnosis? I can't be the only one I'm just an average guy.