lilblueheron
New member
- Joined
- Mar 9, 2013
- Messages
- 4
- Reason
- Loved one DX
- Diagnosis
- 05/2012
- Country
- US
- State
- IL
- City
- Naperville
I am new to this site and am very grateful to have found it.
My 53 year old brother was diagnosed with ALS in May of 2012. We were close as children, but not so much as adults. His diagnosis has brought us closer again. In the past two months, he's lost most of his strength in his arms and upper body. Fortunately he can walk and talk, though he is starting to feel impaired in both ways. He is dealing with it as best he can, and has a lot of support from his physicians, the Les Turner foundation, and of course family and friends.
This is not about me, but this past week has forced me to encounter something I dreaded. He spoke to me about the decline in his upper body, and frustration at his loss of independence. I did not know what to say but "I'm sorry". I feel like there must be more to say, more I could do, but I feel horrible that words failed me. I wonder if others have gone through this. I'd appreciate any thoughts. Thank you.
My 53 year old brother was diagnosed with ALS in May of 2012. We were close as children, but not so much as adults. His diagnosis has brought us closer again. In the past two months, he's lost most of his strength in his arms and upper body. Fortunately he can walk and talk, though he is starting to feel impaired in both ways. He is dealing with it as best he can, and has a lot of support from his physicians, the Les Turner foundation, and of course family and friends.
This is not about me, but this past week has forced me to encounter something I dreaded. He spoke to me about the decline in his upper body, and frustration at his loss of independence. I did not know what to say but "I'm sorry". I feel like there must be more to say, more I could do, but I feel horrible that words failed me. I wonder if others have gone through this. I'd appreciate any thoughts. Thank you.