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ltbeauti

Distinguished member
Joined
Feb 22, 2011
Messages
215
Reason
PALS
Diagnosis
04/2008
Country
US
State
VA
City
Chester
FDA Public Hearing Update * As we announced last month, the FDA will host an ALS-specific public hearing on Monday, February 25, 2013.* The hearing is open to people with ALS, their families, ALS organizations, researchers and clinicians, the pharmaceutical industry and to the general public. It is a tremendous opportunity for the ALS community to share the ALS story and our unique perspectives with the FDA.

Remote Access: At The Association’s urging, the FDA will allow people who are unable to attend the hearing in person, to view it via a live webcast at https://collaboration.fda.gov/als/.* Webcast participants will not be able to ask questions or make comments during the webcast; however, people may submit comments via regulations.gov as described below.

http://capwiz.com/alsa/utr/1/HPSMSSNYYY/LXXKSSPVCT/9281693501
 
Thanks for the update. The webcast is on my calendar for Monday.
 
What time will the meeting be.
Thanks
 
The meeting starts at 9 AM Eastern time. 1st 10 minutes on introduction, then we start off with Jane Gilbert and Lucy from the ALS Association. I'm on the docket for right before lunch. We are very blessed that many of the top physicians and researchers are joining us. Let's see if altogether we can get something done!
 
Thanks for the "heads-up" for the FDA symposium. What a great day for our ALS community ! !
 
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