Old 01-24-2013, 08:13 AM #1 (permalink)
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City: warner robins
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Country: US
Interest: I am a friend of someone with ALS/MND.
Posts: 3
bmagilligan is on a distinguished road
Default CVID tests and treatments may help ALS

Hi ,

I have several friends who were diagnosed and were in bad shape. Walking with braces etc. Turns out their problems were caused by CVID, common variable immuno deficiency. They are now receiving monthly IVIG therapy and have been restored to near their previous health. Only downfall is they will need this treatment for the rest of their lives. I was also heading down the road of this diagnoses but was diagnosed with CVID first, but only because I did research and had my doctors run the tests. I went through about 30 doctors with no diagnoses and no hope of ever getting better. I also receive these IVIG treatments, I wouldnt be alive today without them. Not sure if this will help you but it is worth checking it out just in case. the tests you need ran are 1. your overall immune system, Total IgG, IgM, IgA 2. IgG Subclass 1, IgG Subclass 2, IgG Subclass 3, IgG Subclass 4. It is a simple blood test that any of your doctors can do.

Hope that helps,
Belinda
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