hi there I guess I am writing this to put my mind at ease if anyone else has been lucky enough to to have their loved one placed in Hospice
firstly I will say it is a wonderful place and the volunteeers and nurses are top notch, now onto my Mom, she was moved from home care to Hospice and it seems as though since she has been there she has been heavily sedated, she has been experiencing great head and neck pain 10/10 I guess I wasn't aware of the great pain that takes place with ALS as I was used to seeing my mom in only moderate pain at home but far more alert, it just seems like Hospice relies heavily on meds to give comfort without really knowing how close my mom is to death?!
I want whats best for my mom and if it means pain free but asleep is the best way then so be it I guess I am just asking what other people have experienced at the darkest of times 'end of life'
Thanks for reading my post, hopefully everyone was able to enjoy their holidays as best they could
firstly I will say it is a wonderful place and the volunteeers and nurses are top notch, now onto my Mom, she was moved from home care to Hospice and it seems as though since she has been there she has been heavily sedated, she has been experiencing great head and neck pain 10/10 I guess I wasn't aware of the great pain that takes place with ALS as I was used to seeing my mom in only moderate pain at home but far more alert, it just seems like Hospice relies heavily on meds to give comfort without really knowing how close my mom is to death?!
I want whats best for my mom and if it means pain free but asleep is the best way then so be it I guess I am just asking what other people have experienced at the darkest of times 'end of life'
Thanks for reading my post, hopefully everyone was able to enjoy their holidays as best they could