Hi Greg,
I don't have ALS but have been an active forum member for almost a year now, and just thought I'd welcome you. I'm sorry you had to find this forum, but as you'll see, this place is full of amazing and supportive people. I'm sure there are other forum members in your age group facing a similar challenge. Hopefully one of them will chime in soon. I'm 33 and have an as-yet-undiagnosed progressive neuromuscular condition. If it's of any value to you, feel free to click my name, view my profile, and browse my previous threads. The one that captures and sums up my experiences best is called "Update - As Promised."
One thing I can tell you is, while you may face some unique challenges being so young with ALS, many of your struggles will be shared with forum members of all ages, so you should get some really solid information and support, here.
Take care,
Luke