montagueles77
New member
- Joined
- Nov 1, 2012
- Messages
- 2
- Reason
- Loved one DX
- Country
- US
- State
- SC
- City
- Charleston
Hello,
My father has been battling ALS for 5 years now. Over the past year, his health has rapidly declined. He is having trouble eating (coughs and chokes), no control of his arms, head, and now weakening in his left leg.
The biggest hurdle now is getting him to sleep for more than half an hour. He refuses to lie in a bed because it is uncomfortable for him as he also has sleep apnea, he feels like all control is lost and his mind doesn't allow him to rest. He wants to be moving from chair, to wheelchair, to sitting on the couch through out the night. My mother and I prop him up on the couch, his legs are bent to the side, we then put a traveling pillow to support his neck/head, and pillows on his right side so he can rest his head. However, through out the night, he is just uncomfortable and needs constant readjusting. You can image how much sleep we get. We take turns doing the night shift, and have set up baby monitors so we can hear him when he stirs or attempts to call out to us.
Does anyone know of a better sleeping position we can try, maybe a specific pillow that allows him to move his legs (while he still has that option)? Has anyone experienced this with a loved one or physically? Any advice would be greatly appreciated.
My father has been battling ALS for 5 years now. Over the past year, his health has rapidly declined. He is having trouble eating (coughs and chokes), no control of his arms, head, and now weakening in his left leg.
The biggest hurdle now is getting him to sleep for more than half an hour. He refuses to lie in a bed because it is uncomfortable for him as he also has sleep apnea, he feels like all control is lost and his mind doesn't allow him to rest. He wants to be moving from chair, to wheelchair, to sitting on the couch through out the night. My mother and I prop him up on the couch, his legs are bent to the side, we then put a traveling pillow to support his neck/head, and pillows on his right side so he can rest his head. However, through out the night, he is just uncomfortable and needs constant readjusting. You can image how much sleep we get. We take turns doing the night shift, and have set up baby monitors so we can hear him when he stirs or attempts to call out to us.
Does anyone know of a better sleeping position we can try, maybe a specific pillow that allows him to move his legs (while he still has that option)? Has anyone experienced this with a loved one or physically? Any advice would be greatly appreciated.