naila1131
New member
- Joined
- Oct 21, 2012
- Messages
- 2
- Reason
- Learn about ALS
- Country
- PH
- State
- NCR
- City
- nnn
hi, i'm Naila, 24 years of age and was diagnosed of having Congenital Hemiatrophy.
until now i still don't know what it means. when i was 18 years old, i started experiencing severe muscle pain on the right side of my body. few months later, i noticed half of my body is shrinking especially my right leg.
i went to a neuro and undergone EMG NCV. the doctor told me that my muscles are too weak. i took COQ10, but it seems to be not working, now i only weigh 39kls.
can someone help me on this. today i am suffering from severe muscle pain and weakness.
until now i still don't know what it means. when i was 18 years old, i started experiencing severe muscle pain on the right side of my body. few months later, i noticed half of my body is shrinking especially my right leg.
i went to a neuro and undergone EMG NCV. the doctor told me that my muscles are too weak. i took COQ10, but it seems to be not working, now i only weigh 39kls.
can someone help me on this. today i am suffering from severe muscle pain and weakness.