edjohnson
Active member
- Joined
- Nov 18, 2011
- Messages
- 48
- Reason
- PALS
- Diagnosis
- 10/2011
- Country
- US
- State
- nc
- City
- emerald isle
ALS treat us now has kept its focus on near term treatment access through regulatory negotiation and through partnering with dug companies. We feel we have made great progress in the last three months.
From the outside it can be hard to see everything that we're doing. These are delicate conversations we're having with several high ranking officials, and unfortunately they can take longer than we would like. Every member of our steering committee either is an ALS patient or has a loved one suffering from this emergency condition. We work with urgency and passion.
And we would like to bring more of you into direct operational roles, if you are willing.
Our petition now has over 17,000 signatures, it has been used with key executives in the FDA and pharmaceutical companies.
From the outside it can be hard to see everything that we're doing. These are delicate conversations we're having with several high ranking officials, and unfortunately they can take longer than we would like. Every member of our steering committee either is an ALS patient or has a loved one suffering from this emergency condition. We work with urgency and passion.
And we would like to bring more of you into direct operational roles, if you are willing.
Our petition now has over 17,000 signatures, it has been used with key executives in the FDA and pharmaceutical companies.