Old 10-07-2012, 04:48 AM #1 (permalink)
New Member
 
Join Date: 2012
City: Hurricane
State: Utah
Country: US
Diagnosed: 09/2011
Interest: I have been diagnosed with ALS.
Posts: 49
JLRNL is on a distinguished road
JLRNL JLRNL is offline
New Member
Join Date: 2012
City: Hurricane
State: Utah
Country: US
Diagnosed: 09/2011
Interest: I have been diagnosed with ALS.
Posts: 49
JLRNL is on a distinguished road
Default Drowning

While in the States last month, I became aware of another one of those "Really" experiences with ALS.

We were staying at a motel with a swimming pool, well I always make use of a swimming pool it makes me feel better, at least in the past. As I eased into the pool, the floating sensation was great after the stuggles with walking. So I was able to forget about the ALS for a moment. Then I made a move that snapped me back to reality, I shoved off to swim, the legs no longer worked for thrust and I started to sink, my only thought was "Really", good thing it wasn't a deep pool, I was able to float to the side. So thank-you ALS, another enjoyment taken.
JLRNL is offline  
Old 10-07-2012, 07:28 AM #2 (permalink)
vzandt's Avatar
Senior Member
 
Join Date: 2011
City: Noneknown
State: N.H.
Country: US
Diagnosed: 04/2010
Interest: I lost a loved one to ALS/MND.
Posts: 572
vzandt is on a distinguished road
vzandt vzandt is offline
Senior Member
vzandt's Avatar
Join Date: 2011
City: Noneknown
State: N.H.
Country: US
Diagnosed: 04/2010
Interest: I lost a loved one to ALS/MND.
Posts: 572
vzandt is on a distinguished road
Default Re: Drowning

My husband had a similar expirence. He went into a pool and was floating on his back. When he tried to roll over his legs wouldn't go down..but his head would. My brother in law was standing next to him and didn't realize anything was wrong. Scary few seconds for my husband.
vzandt is offline  
Old 10-07-2012, 09:59 AM #3 (permalink)
Miss's Avatar
Very Helpful Member
 
Join Date: 2010
City: Way Down South
State: In the Land of Cotton
Country: US
Diagnosed: 04/2010
Interest: I lost a loved one to ALS/MND.
Posts: 1,760
Miss is on a distinguished road
Miss Miss is offline
Very Helpful Member
Miss's Avatar
Join Date: 2010
City: Way Down South
State: In the Land of Cotton
Country: US
Diagnosed: 04/2010
Interest: I lost a loved one to ALS/MND.
Posts: 1,760
Miss is on a distinguished road
Default Re: Drowning

So sorry for your experience. My husband had the same thing happen. We bought a top rate life vest and solved the problem!
Miss is offline  
Old 10-07-2012, 10:12 AM #4 (permalink)
Senior Member
 
Join Date: 2010
City: Valley
State: Al
Country: US
Diagnosed: 10/2010
Interest: I lost a loved one to ALS/MND.
Posts: 986
joni51 is on a distinguished road
joni51 joni51 is offline
Senior Member
Join Date: 2010
City: Valley
State: Al
Country: US
Diagnosed: 10/2010
Interest: I lost a loved one to ALS/MND.
Posts: 986
joni51 is on a distinguished road
Default Re: Drowning

i am so sorry..
joni51 is offline  
Old 10-07-2012, 10:19 AM #5 (permalink)
Senior Member
 
Join Date: 2011
City: Leduc County
State: AB
Country: Can
Diagnosed: 11/2010
Interest: I lost a loved one to ALS/MND.
Posts: 923
cervus is on a distinguished road
cervus cervus is offline
Senior Member
Join Date: 2011
City: Leduc County
State: AB
Country: Can
Diagnosed: 11/2010
Interest: I lost a loved one to ALS/MND.
Posts: 923
cervus is on a distinguished road
Default Re: Drowning

So sorry for your experience. Yasmin.
cervus is offline  
Old 10-07-2012, 07:12 PM #6 (permalink)
New Member
 
Join Date: 2012
City: Toronto
State: Ontario
Country: CA
Interest: symptoms mimic ALS and are progressive
Posts: 12
Karin Bolette Sonne is on a distinguished road
Karin Bolette Sonne Karin Bolette Sonne is offline
New Member
Join Date: 2012
City: Toronto
State: Ontario
Country: CA
Interest: symptoms mimic ALS and are progressive
Posts: 12
Karin Bolette Sonne is on a distinguished road
Default Re: Drowning

I had to stop swimming, which I love doing. About 2 years ago when I wasn't able to get my breath and my legs weren't moving me, I was going under fast, but luckily I was closed to the edge and worked my way back to the stairs. In my good days I swam 40 lengths every day. I didn't like having to give it up but that's the way it goes. It's good to find something you can still do and enjoy it to the fullest. I finally got my power chair and can go out in my community again. I use to walk everywhere and sitting inside was a killer. Now I love driving it in the sun or on cloudy days- it's almost like walking- only I can go faster and beep all those 20 year olds with their I pads and ear plugs right off the sidewalk. Bets sitting inside watching the world. It makes me still a part of where I live and that makes me feel important. I've had so much trouble trying to get diagnosed and know that I'm there I'm not very angry anymore. One needs to let it go or the time you have slips away in anger and fear.
Karin Bolette Sonne is offline  
Old 10-08-2012, 12:14 AM #7 (permalink)
Member
 
Join Date: 2011
City: Chester
State: VA
Country: US
Diagnosed: 04/2008
Interest: I have been diagnosed with ALS.
Posts: 215
ltbeauti is on a distinguished road
ltbeauti ltbeauti is offline
Member
Join Date: 2011
City: Chester
State: VA
Country: US
Diagnosed: 04/2008
Interest: I have been diagnosed with ALS.
Posts: 215
ltbeauti is on a distinguished road
Default Re: Drowning

So sorry to hear. I had similar experience. I swam all my life. I grew up on the water. Now I can't swim because I can't hold my breath and legs are not very strong.

I have an above ground pool and I did still go in this past summer, but I just walked around.
Like Karen, I got a scooter and go for walks with my neighbor when he walks his dogs. I had to find a new something to do after yet another loss. It really helps me to get out.
ltbeauti is offline  
Old 10-09-2012, 07:11 PM #8 (permalink)
New Member
 
Join Date: 2012
City: Toronto
State: Ontario
Country: CA
Interest: symptoms mimic ALS and are progressive
Posts: 12
Karin Bolette Sonne is on a distinguished road
Karin Bolette Sonne Karin Bolette Sonne is offline
New Member
Join Date: 2012
City: Toronto
State: Ontario
Country: CA
Interest: symptoms mimic ALS and are progressive
Posts: 12
Karin Bolette Sonne is on a distinguished road
Default Re: Drowning

Itbeauti- I looked for your site but couldn't find it in the member list. I thought you might want to chat- Karin Bolette Sonne and Karin Bolette are my two sites. I lost my username and reset ending up with 2 sites. Send me a note maybe we have other things in common. Not a lot of people want to hear about our problems even old friends. Karin
Karin Bolette Sonne is offline  
Old 10-09-2012, 07:35 PM #9 (permalink)
Member
 
Join Date: 2011
City: Burlington
State: Vernont
Country: US
Diagnosed: 10/2009
Interest: I have been diagnosed with ALS.
Posts: 156
BeckyW is on a distinguished road
BeckyW BeckyW is offline
Member
Join Date: 2011
City: Burlington
State: Vernont
Country: US
Diagnosed: 10/2009
Interest: I have been diagnosed with ALS.
Posts: 156
BeckyW is on a distinguished road
Default Re: Drowning

I too was a swimmer and felt I was drowning. We had a float that I would lay on. I fell asleep I felt so relaxed.
BeckyW is offline  
Old 10-09-2012, 08:30 PM #10 (permalink)
Extremely Helpful Member
 
Join Date: 2006
Country: HM
Interest: Other
Posts: 5,204
brooksea is on a very distinguished road
brooksea brooksea is offline
Extremely Helpful Member
Join Date: 2006
Country: HM
Interest: Other
Posts: 5,204
brooksea is on a very distinguished road
Default Re: Drowning

Please be careful getting into water that surrounds your chest. Early on, my husband found that he could no longer get into a pool, Jacuzzi or the ocean, even though he had strong legs and only one arm was really affected to the point of weakness. The reason was water pressure on his diaphragm. He felt like he was being crushed and could not catch his breath.
brooksea is offline  
Old 10-09-2012, 11:03 PM #11 (permalink)
panguinjen's Avatar
Senior Member
 
Join Date: 2012
City: Stockton
State: CA
Country: US
Interest: I lost a loved one to ALS/MND.
Posts: 523
panguinjen is on a distinguished road
panguinjen panguinjen is offline
Senior Member
panguinjen's Avatar
Join Date: 2012
City: Stockton
State: CA
Country: US
Interest: I lost a loved one to ALS/MND.
Posts: 523
panguinjen is on a distinguished road
Default Re: Drowning

Oh my! You all have probably saved Rog. He got a new pair of swim trunks to wear in the pool at San Diego....he may be dangling his legs in the shallow end if at all! I will be very alert!

Thank you all soooo much!

Jen
panguinjen is offline  
Old 10-10-2012, 12:32 AM #12 (permalink)
Very Helpful Member
 
Join Date: 2012
City: Emerald
State: Kansas
Country: US
Diagnosed: 11/2008
Interest: Yesterday was the time of our lives
Posts: 1,019
Toto's Dorothy is on a distinguished road
Toto's Dorothy Toto's Dorothy is offline
Very Helpful Member
Join Date: 2012
City: Emerald
State: Kansas
Country: US
Diagnosed: 11/2008
Interest: Yesterday was the time of our lives
Posts: 1,019
Toto's Dorothy is on a distinguished road
Default Re: Drowning

Thank you too. I was wanting to try therapy at our Y. I think I will stick to dry land.
Toto's Dorothy is offline  
Old 10-14-2012, 09:58 PM #13 (permalink)
Sammantha's Avatar
Senior Member
 
Join Date: 2007
City: Newport
State: NC
Country: Uni
Interest: I have pseudobulbar palsy and spastic paraplegia
Posts: 505
Sammantha is on a distinguished road
Sammantha Sammantha is offline
Senior Member
Sammantha's Avatar
Join Date: 2007
City: Newport
State: NC
Country: Uni
Interest: I have pseudobulbar palsy and spastic paraplegia
Posts: 505
Sammantha is on a distinguished road
Default Re: Drowning

I know how yoou feel, just whenyou have a chance NOT to think about your disorder, it slaps you in the face like how dare you forget! ONE day there will be a treatment and we can be like, take that! Although we might sound a little nuts, I dont care
Sammantha is offline  
Closed Thread

Tags
als, back


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
I'm drowning in my own depression Loverly Current Caregivers (CALS) 17 07-17-2015 05:27 PM
Drowning in self-pity Mike in Maine General Discussion About PLS 15 11-18-2013 11:08 AM
BiPAP and drowning. Ken's Kid General Discussion About ALS/MND 3 12-21-2011 11:07 PM
Help im drowning Mahealani People With ALS - "PALS" 4 10-29-2011 10:50 AM
Drowning in paperwork! CoachMeg Rants & Raves 8 05-01-2011 03:27 AM
New Here.. Drowning.. and Soo Overwhelmed. :( Jason's Dream Current Caregivers (CALS) 34 12-04-2010 10:27 AM
My husband sounds like he's drowning brooksea General Discussion About ALS/MND 12 09-28-2007 10:56 PM


All times are GMT -5. The time now is 09:54 AM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016