Al fox
Active member
- Joined
- Aug 11, 2012
- Messages
- 35
- Reason
- PALS
- Diagnosis
- 06/2011
- Country
- Cad
- State
- Ontario
- City
- Toronto
My name is Alan I'm 40 years old and was diagnosed with bulbar onset ALS June 2011. Since that time I've been able to operate at a fairly high level. I continue to work(30 hours a week), and take part in my children's activities. The illness has resulted in me living in pain (neck pain)from the moment I get out of bed until I go to sleep at night, my speech has also become worse over the past year. I,early on, decided to fight this thing with all my might. I despise this illness and will continue to do so untill either a cure is found or the day I die.
My regime involves taking 20 supplements twice a day, acupuncture once a week, drinking Chinese herbal tea twice a day, glutathione injections once a week, and regular exercise(not as regular as I would like).
My family and I are hosting a walk to raise funds for research on September 29th, and to date have raised $130,000 and hope to raise another $20,000 by Saturday. The walk is called the Foxtrot and will be held in the west end of Toronto. The funds will used to sponsor a study at the University of Toronto into stem cells taken from the spinal column and their impact on mice and eventually people living with ALS.
I would be very intererested in taking on discussions regarding how people are successfully dealing with this illness. Please let me know if this would of interest to any of you.
Best regards,
Alan
My regime involves taking 20 supplements twice a day, acupuncture once a week, drinking Chinese herbal tea twice a day, glutathione injections once a week, and regular exercise(not as regular as I would like).
My family and I are hosting a walk to raise funds for research on September 29th, and to date have raised $130,000 and hope to raise another $20,000 by Saturday. The walk is called the Foxtrot and will be held in the west end of Toronto. The funds will used to sponsor a study at the University of Toronto into stem cells taken from the spinal column and their impact on mice and eventually people living with ALS.
I would be very intererested in taking on discussions regarding how people are successfully dealing with this illness. Please let me know if this would of interest to any of you.
Best regards,
Alan