insomnia
Member
- Joined
- Sep 24, 2012
- Messages
- 22
- Reason
- Lost a loved one
- Diagnosis
- 09/2012
- Country
- EU
- State
- NY
- City
- Other
Hi,
I am new here. My mom is in the process of diagnostics. But I am sure she has ALS. She had MRI of head and neck and many diseases were ruled out. She will have EMG in two weeks. She has obvious symtoms and I am devastated. I won't tell how much I feel for my mom, but my question is about heredity.
As much as I know in our family history there was't anyone who had ALS. But our family history is not complete. My mom's father died young from an accident. Her mother (my grandmother) had dementia. Also 3 more of her siblings had it too. I dont know what kind of dementia it was, we think its Alzheimer's, because noone had developed any walking or speaking problems. My mother doesn't have any brothers or sisters. We don't know what diseases did mothers grandparents have. So I am confused and anxious. Is it sporadic or familial. I understand its impossible to know cause of incomplete family history. Even if its sporadic, maybe my mother is the first who developed the bad gene? I read many forums and many people who developed ALS had a parent with it.. I am so scared. I just planned to have a baby. I am double scared cause what my mother will be going through. But in the future I think I will always have this black thoughts in me about my future and possibility to develop a disease. I inherited much from my mother - her temper, her look and some of her diseases I have already... So scared. How you, children of parents who had ALS, cope?
I am new here. My mom is in the process of diagnostics. But I am sure she has ALS. She had MRI of head and neck and many diseases were ruled out. She will have EMG in two weeks. She has obvious symtoms and I am devastated. I won't tell how much I feel for my mom, but my question is about heredity.
As much as I know in our family history there was't anyone who had ALS. But our family history is not complete. My mom's father died young from an accident. Her mother (my grandmother) had dementia. Also 3 more of her siblings had it too. I dont know what kind of dementia it was, we think its Alzheimer's, because noone had developed any walking or speaking problems. My mother doesn't have any brothers or sisters. We don't know what diseases did mothers grandparents have. So I am confused and anxious. Is it sporadic or familial. I understand its impossible to know cause of incomplete family history. Even if its sporadic, maybe my mother is the first who developed the bad gene? I read many forums and many people who developed ALS had a parent with it.. I am so scared. I just planned to have a baby. I am double scared cause what my mother will be going through. But in the future I think I will always have this black thoughts in me about my future and possibility to develop a disease. I inherited much from my mother - her temper, her look and some of her diseases I have already... So scared. How you, children of parents who had ALS, cope?
