Question about atrophy

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Compass Rose

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I have a basic question about atrophy but haven't been able to find the answer online.

My question is, does atrophy always start where the weakness started, or could it start somewhere else? For example, if weakness started in a leg, would it be possible for the hands to atrophy before the weak leg does?

Thamks in advance for any input.
 
I can't answer yes or no to that question. For me, my left leg was the starting point. As time passed it has atrophied a lot. My right leg got weaker and has some atrophy later on. Then onto to my hands and arms. Not a lot there yet but somewhat noticeable. So, for me, the atrophy occurred in the weakest area first and grew the fastest as it declined rapidly. The other areas jumped in as ordered by my body, LOL.
 
May I ask-what does atrophy look like? I haven't googled it, maybe I should. My neuro said in July he could not ascertain seeing any
atrophy. THANKS ahead of time if anyone wishes to respond!
 
Personally, noticeable atrophy began where my symptoms began. In my right hand. I didn't notice it until my Neuro pointed it out to me.
 
I noticed the weakness a lot before I saw any atrophy. It was probably four years ago. I flew to Washington state to visit my cousin and went to a Chinese restaurant. I grew up in Honolulu and have been using chopsticks is up since I was three. And suddenly I couldn't make them work. I figured it was jet lag so I ignored. Then once back home I found I couldn't open a water bottle or yogurt container. That was my dominant hand and that was the start. The weakness started significantly before I noticed any visual atrophy. I figure most find most of muscle motions are compound muscle movement, so you lose a couple of muscles and it still works, then you lose one more and it doesn't. All these years later 80% of my right hand is gone, 10% of my left hand is gone, the diagnosis is conclusive, and on we go.
 
Left leg wouldn't work right. He kept tripping. Waited a year and then noticed left leg was about an inch smaller then the right. That was the beginning .......
....
 
For me, the atrophy began where my symptoms began! In my hand!
 

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I didn't notice atrophy in my dominant hand until it was pointed out to me by the neuro.
 
For my husband there is always intense twitching followed by weKNESS.tHE ATROPHY HAPPENED GRADUALLY BUT IN THE ARM AND HAND WHERE IT BEGAN.
 
Thanks, everyone. That's what I suspected. I realize that the disease progresses differently for everybody, but it sounds like it's typical for the atrophy to start where the weakness started. Which in my PALS' case, would be his hands.
 
I want to hug you all for what you are going thru...I want to tell you everything will be ok, knowing it will only get worse but that is what came to me when reading your posts. I know you all are going thru so much...and your caregivers are as much.
I don't want to add anything but love no pitty just love.....and hope always hope...

Yesterday my lady that comes in to bath and dress me was just done bathing me and I was in my elect chair and she was putting rubbing stuff all over me...she said, "ruth" your right arm isn't working? What? she show me...I watch her and my arm like it didn't belong to me any more? it just drop out of her hands...I couldn't tell it to do nothing? weird I would say. Usually my left arm acts like that and my left side is my weaker side...so I was a bit scared to say the least. then I though of all of you how brave you all are...I can't panic no I can't...
My husband put a call into a place call inspriris out here they come to your home with doctor and nurses...for people that have more health issues, and in need for multiple medical care...etc. I hope they can help me now.
Today my legs been doing their dance of numbness together both...not able to been at the knees. I do have drop foot also.

A couple of weeks ago I had a bad fall...my husband didn't take me to the ER, and since I don't have a doctor for the moment that wasn't something could be done. Lucky nothing the next day shown broken...I was sent to another Orhtopedic doctor told me what I already knew.
My ankle was dead...I knew that is why I fall alot...he was talking about the left one...I can't feel my feet or my toes don't move, but the fall open up new things...the foot for the first time in years change grom beeing deform one way is in a new form in another way...weird.

Oh I have shakes I call them....I not sure what you all call your termors etc....I have uncontrolable shakes...where my hands to these weird things that people stair at me...I try to stop by sitting on my hands so no one can see me. The doctor never said a word anything about them. I just tell them I'm neuvous and that seems to satisfied them. but in truth I dont' know or understand?

I don't get any type of good doctoring...we just try to find this other doctor that would take my insurance the other day who to my face told me I am too hard....and he didn't want to see me....all while I had this thing that morning where I woke up to bleeding....uncontrolble pooring out bleeding...he didn't even look at my foot...so sad he said he was good a diabetes..yet didn't even want to look at the sores on my foot...so i won't go back to him...that is what I face a battle to find doctors who want to take a mulit disable person on.

But I keep up the spirts no matter what....sometimes I do get down. I thought for the longest time that a Grandfather had ALS...I was told this by my father he had ALS...I guess with my search finding out what is wrong with me I was just searching...I know you hate that...but please don't hate me. I finnally found my grandfather death records after years of searching for him. He died in 1923...so I been searching for sometime.

Well I thought I have really very little true I have many symtoms of several other dieases that minic ALS....so I probably don't have ALS....where do we all go? I have lost feeling in the sides of my face you can stick pins I won't feel them...I have lost feelings in my legs both, hands, and some of my fingers, and arms and they come in and out...some all the way up to my weist area.

I hope you let me keep on reading and forgive me for doing things sometimes wrongly...I never expect anyone to think I want anyone to tell me what is my illness, etc. but I search for reasons maybe wrong but that's me...Or answers maybe wrong that is me...maybe how to cope I have panic attacks now...so I hope I can learn from you all . I can be dumb as a rock as my husband says....smile... just in case i did I say it in advance.
 
My left HAND looks pretty much like the one in the pic above, but it was weak months before it wasted away to nothing.

To whomever was going to Dr G atrophy....don't bother. When it's there, it's quite obvious, as I'm the pic already posted.

The doctor noticed the beginning atrophy in my right hand, I hadn't noticed it at all, must the weakness.
 
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That was me, notme. I didn't google it, I have learned it is best to not, I get too many ideas, thoughts and concerns. Best to let my doctors let me know and discuss when I can schedule appmts.
 
Buslady, please find a good internal med doc for the multiple health issues, and a neurologist for the loss of function in the body.

While ALS causes insidious loss of function and ultimate paralysis, what you describe sounds like something just as sinister, but not ALS, since it's affecting so much at once.

You have bleeding from where? Are you on blood thinners?

With diabetes and with neuropathy that accompanies it, you will want someone to be checking your feet often.

Just because you might not have a lot of medical knowledge doesn't make you as dumb as a rock. That's a horrible thing to have a spouse say to you.

Like me, apparently, you have more than one health issue going on. I've had more than one doctor refuse to treat me as being too complicated a case, normally those are family medicine doctors. Internal med docs are a bit more trained in some more complicated cases.

Has someone suggested ALS to you? Do you have a neurologist? Sometimes, a call to the insurance company can get you a list of doctors and their specialities. It sounds to me that you aren't being seen to properly.

If your legs are not working, do you have access to a wheelchair to prevent falls? I hope you find the help you need.

Edward, atrophy starts slowly, as Ms Pie said, her doc noticed it. Eventually, like in the picture of the hand above, it becomes quite obvious, and by the time it looks like that picture, it's quite obvious to the person with it as that hand will have substantial loss of ability.

I don't know of anyone that had atrophy before any weakness.

That can sometimes make things more confusing during the diagnostic process as well. I had clinical weakness months before atrophy. And I'd noticed weakness months before it became apparent I wasn't just clumsy.

But, all that said, there are many causes of weakness and even atrophy other than ALS. See yor doc, Edward. Not much gets past a good neuro.
 
THANKS not me! Like you, I don't know exactly what is wrong with me, far from it. They say I don't have ALS-this from two specialists, one neuromuscular in St. Louis.

I know something is wrong, but they haven't been able to pinpoint just what it is yet. I get so discouraged and frightened but all I can do is hang in there. I have weakness also and it seems to me uncoordination issues. But app. it isn't clinical weakness or it would have turned up on my exam(s). Lots of other things, I just won't mention them here. And then the frightening part is the weakness and swallowing issues when I eat, chew, etc. No choking yet. I see my regular neuro at the end of this month. For my six months followup visit. We will talk more then. Thanks on atrophy answers.
 
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