Old 08-29-2012, 09:58 AM #1 (permalink)
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Default Rapid decline is shocking!

I have been a caregiver for my wife for over 2 yrs. She has had her ups and downs. This last episode caught me in unbelief. On a recent Tue. she was evaluated by hospice and told that she was doing too good and was going to be bumped off the program. This despite the increasing problems with swallowing. Two days later, she was incoherent and unalbe to drink or eat. Yes, it can happen that fast! Over a horrible weekend, I soul searched and hurt for my wife for whom I could not help. That is the most terrible feeling. Finally, I called hospice and she went back to the center. She has been there two days and her condition is not good. She continues to be out of her head (FTD) and will not eat or drink. Her Dr., who is a neurologist, said that she probably would not leave hospice. For those in doubt about first hand experience--Don't be. The kind people on this forum see what is going on and they do not lie. A patient may change in an instance and it is just the nature of this beast of a disease! Hang tight all that are called on to be strong.
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Old 08-29-2012, 11:31 AM #2 (permalink)
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Default Re: Rapid decline is shocking!

I'm sorry to hear of the change in your wife's condition! Our prayers and thoughts are with you both...

Jen
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Old 08-29-2012, 11:37 AM #3 (permalink)
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Default Re: Rapid decline is shocking!

Sending prayers to you and your wife.
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Old 08-29-2012, 11:43 AM #4 (permalink)
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Default Re: Rapid decline is shocking!

Sending prayers for your wife and you and your family. Wishing you courage and peace during this so difficult time.
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Old 08-29-2012, 12:14 PM #5 (permalink)
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Default Re: Rapid decline is shocking!

so sorry to hear about your wife. Things can change so quickly. Thinking of you. x
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Old 08-29-2012, 01:05 PM #6 (permalink)
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Default Re: Rapid decline is shocking!

I am so sorry. This disease is terrifying for those of us that are only at the beginning. I will be praying for you and your wife.
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Old 08-29-2012, 01:06 PM #7 (permalink)
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Default Re: Rapid decline is shocking!

I am so sorry for you and your wife. I think everyone on this forum understands that things can change so quickly.
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Old 08-29-2012, 01:15 PM #8 (permalink)
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Default Re: Rapid decline is shocking!

I will be praying for you and your wife. Thank you for being a loving husband and doing the best that you possibly can with this cruel disease. May God bless you and give your strength. We all care on here. Hugs to you, Kim
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Old 08-29-2012, 01:52 PM #9 (permalink)
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Default Re: Rapid decline is shocking!

My thoughts and prayers are with, and yes things change fast, and it scares me and everyone I'm sure what the future holds for us, I chose not to think about it or I would go insane. One day at a time, just like someone trying to stay clean from drugs or alcohol, thinking to much can make you crazy, and just get you upset, God be with you and your wife, and give you all the strength you need to handle this. Take care.
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Old 08-29-2012, 01:55 PM #10 (permalink)
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Default Re: Rapid decline is shocking!

Prayers being sent for your courage and strength. Take care

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Old 08-29-2012, 03:22 PM #11 (permalink)
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Default Re: Rapid decline is shocking!

I'm sorry Hangingon
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Old 08-29-2012, 04:58 PM #12 (permalink)
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Default Re: Rapid decline is shocking!

Prayers and caring thoughts for you during this time.
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Old 08-29-2012, 07:49 PM #13 (permalink)
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Default Re: Rapid decline is shocking!

Dear Hangingon1

Sorry your wife is not doing well......Please know that you and your family are in my thoughts and prayers.

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Old 08-29-2012, 08:31 PM #14 (permalink)
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Default Re: Rapid decline is shocking!

I'm so sorry about the sudden change. Sending wishes for strength and peace your way.
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Old 08-29-2012, 08:58 PM #15 (permalink)
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She has passed into a better world.
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