dberbicegirl
Member
- Joined
- Jun 11, 2012
- Messages
- 10
- Reason
- Loved one DX
- Diagnosis
- 01/2012
- Country
- US
- State
- MARYLAND
- City
- SILVER SPRING
Hi Everyone:
Has anyone with ALS/MND ever considered stem cell therapy? My brother was diagnosed with ALS in January 2012. I suspect that he was experiencing some symptoms way before he consulted with a neurologist. He started with his speech slurring around July 2011. Due to the fact that he resides in the Islands and no specialists around, he waited until he could have travelled to the USA.
Five years ago he said he started with a pain in his left shoulder and consulted with a joint specialist, who extracted fluid from his shoulders. Since then he has had only periodic bouts of pain, until his speech was affected. Am I to assume that he may have had this for a while?
It is difinitive now - he did have all the necessary tests and was diagnosed at GW - the ALS clinic there. I saw him 2 months ago and his arms and shoulders have atrophied - he eats oK, has a lot of saliva accumulating in his mouth and slowly losing the use of his right hand. He complains of severe weakness in both arms
I am not sure how to go about telling the family that time is of the essence. I have received quite a bit of information on Stem cell therapy and just needed some imput and guidance.
Thanks and I am hopeful.
Desi
Has anyone with ALS/MND ever considered stem cell therapy? My brother was diagnosed with ALS in January 2012. I suspect that he was experiencing some symptoms way before he consulted with a neurologist. He started with his speech slurring around July 2011. Due to the fact that he resides in the Islands and no specialists around, he waited until he could have travelled to the USA.
Five years ago he said he started with a pain in his left shoulder and consulted with a joint specialist, who extracted fluid from his shoulders. Since then he has had only periodic bouts of pain, until his speech was affected. Am I to assume that he may have had this for a while?
It is difinitive now - he did have all the necessary tests and was diagnosed at GW - the ALS clinic there. I saw him 2 months ago and his arms and shoulders have atrophied - he eats oK, has a lot of saliva accumulating in his mouth and slowly losing the use of his right hand. He complains of severe weakness in both arms
I am not sure how to go about telling the family that time is of the essence. I have received quite a bit of information on Stem cell therapy and just needed some imput and guidance.
Thanks and I am hopeful.
Desi