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06-14-2012, 07:26 AM
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#1 (permalink)
| | Member Registered Member Join Date: 2012 City: SMALL TOWN IN State: ILLINOIS Country: US Diagnosed: 00/0000
Posts: 269
|  Worried sick
My dad has went to two neurologist. One referring him to the other for more test. The last test being a muscle biopsy. They both then gave him the diagnosis of ALS. My brother/sister then decided to take him to Dallas to see a ALS specialist. He went Tuesday and the doctor spent from 12:30- 8:00 running numerous tests including for the first time a brain scan. He said even though my dad has many symptoms of ALS he is not ready to give my dad that diagnosis without ruling out some other diseases that mimic it. He says he will know the results in two weeks. I am here in my dad's home town nervous and worried sick because I haven't seen him since Memorial weekend. The longest in my life I have ever went without seeing him was 10 days. His voice was very garbled last night when he called which made me cry after I hung up. Kim
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06-14-2012, 06:42 PM
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#2 (permalink)
| | Senior Member Registered Member Join Date: 2012 City: Stockton State: CA Country: US Diagnosed: 00/0000
Posts: 523
| Re: Worried sick
Kim,
I'm sorry, this is heart wrenching....you can do this! We are here for you...we all grieve as we go through this....a teary day for me as well...
Thinking of you and sending lots of hugs and tissues!
Jen
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06-14-2012, 06:53 PM
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#3 (permalink)
| | New Member (Say Hi) Registered Member Join Date: 2012 City: Clarksville State: TN Country: US Diagnosed: 05/2012
Posts: 34
| Re: Worried sick
Try to be strong for your father. I too have been diagnosed with ALS and I have a daughter........she too is worried about me. You are not alone....and all of us here I am sure are hopeful that your father gets a diagnosis of a treatable disease and not ALS.......wishing you and your family lots of strength during this most difficult of times.......cheers....fp
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06-14-2012, 08:06 PM
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#4 (permalink)
| | Member Registered Member Join Date: 2011 City: Bible Belt State: OK Country: US Diagnosed: 09/2011
Posts: 186
| Re: Worried sick
it's good that the dr is being very thorough! it's best to rule out everything else it could possily be.
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06-14-2012, 10:36 PM
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#5 (permalink)
| | Senior Member Registered Member Join Date: 2010 City: country State: Darkside of Moon Country: OS Diagnosed: 11/2010
Posts: 818
| Re: Worried sick
Kim so sorry about your dad's diagnosed, hopefully you will have more answers soon. Tha waiting is so hard. Do not woorry he sounds in good hands. I know iy is scarey, try ans stay strong for him, my son did for me and keeps me in place. {{HUG}} Welcome to our forum family, hope they do find somethinfle treatable.
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06-16-2012, 01:16 PM
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#6 (permalink)
| | Member Registered Member Join Date: 2012 City: SMALL TOWN IN State: ILLINOIS Country: US Diagnosed: 00/0000
Posts: 269
| Re: Worried sick
Thanks to everyone for responding to my posts and the words of encouragement. My husband tries to be as understanding as possible but he doesn't really understand what were going through. I'm doing better. Think I just needed a good cry. May God bless each one of you. Kim
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06-16-2012, 01:50 PM
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#7 (permalink)
| | Extremely Helpful Member Registered Member Join Date: 2009 City: Reno State: NV Country: US Diagnosed: 09/2009
Posts: 2,297
| Re: Worried sick
Kim, have you visited us at Tea? Come for tea | |
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06-16-2012, 02:04 PM
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#8 (permalink)
| | Very Helpful Member Registered Member Join Date: 2010 City: Southborough State: MA Country: US Diagnosed: 00/0000
Posts: 1,575
| Re: Worried sick
Great idea SadieMae, Kim you should come for tea, we talk about everything there, mostly off-topic stuff like dog poop, gardens, and Di's magical brownies!
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06-17-2012, 01:07 AM
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#9 (permalink)
| | Senior Member Registered Member Join Date: 2012 City: Stockton State: CA Country: US Diagnosed: 00/0000
Posts: 523
| Re: Worried sick
Yes, Kim ! Come for tea!
Jen
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06-17-2012, 03:14 PM
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#10 (permalink)
| | Very Helpful Member Registered Member Join Date: 2006 City: lopatcong NJ State: newjersey Country: us Diagnosed: 7/1999
Posts: 1,164
| Re: Worried sick
Quote:
Originally Posted by skipper66  My dad has went to two neurologist. One referring him to the other for more test. The last test being a muscle biopsy. They both then gave him the diagnosis of ALS. My brother/sister then decided to take him to Dallas to see a ALS specialist. He went Tuesday and the doctor spent from 12:30- 8:00 running numerous tests including for the first time a brain scan. He said even though my dad has many symptoms of ALS he is not ready to give my dad that diagnosis without ruling out some other diseases that mimic it. He says he will know the results in two weeks. I am here in my dad's home town nervous and worried sick because I haven't seen him since Memorial weekend. The longest in my life I have ever went without seeing him was 10 days. His voice was very garbled last night when he called which made me cry after I hung up. Kim | Your fathers doctor sounds very competent .Wait and see how the test come out
Good luck
Pat
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| | | Tags | als, brain, brother, cry, dad, diagnosis, memorial, muscle, muscle biopsy, neurologist, night, symptoms, symptoms of als, test, tests, worried  | |
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