jamiem
Distinguished member
- Joined
- May 4, 2012
- Messages
- 151
- Diagnosis
- 08/2012
- Country
- US
- State
- TX
- City
- Mabank
I left my job after 20 years yesterday. I have 12 weeks of sick leave and then will have no insurance or income. I have lost my ability to speak coherently. I cry so easily and without provocation. My pulmonary test are compromised but not eligible for oxygen yet. The ventilators have given me thrush. I have bulbar ALS. I am just learning to live with my life as it is. I am on this forum because I feel so alone and frightened of each day. I am really not into self pity and have a God journal that I post in frequently, but I would like to reach out out to each of you and just know that I am not alone on this journey.