CathyP
Active member
- Joined
- Feb 29, 2012
- Messages
- 91
- Reason
- PALS
- Diagnosis
- 12/2011
- Country
- US
- State
- Kentucky
- City
- Small Town in Western KY
When Dr Donofrio (Vanderbilt in TN) "officially" diagnosed me with ALS in Jan of this year I STUPIDLY didn't immediately sign up for the ALS clinic they have there. I called Vandy today and was told I waited too long to come to clinic and would have to see Dr. D again so he could "refer" me to clinic. I say OK I would like an appt with Dr. D....Dec 26 was first available appt. I was stunned. I ended up getting to talk to Dr. D's nurse who was going to email Dr. D and see if he would see me sooner.
ANOTHER stupid thing I didn't do when first diagnosed....I just now this week been trying to sign up with my local ALS (thats a joke...I have left voicemail and emailed...still no answer) and local MDA (lady is going to send me packet of papers to fill out and send back). I STUPIDLY thought I could call either place and request something from their loan closets.....WRONG....MDA told me I would need a request for item from my doctor.
This post should probably be in WHINE & CHEESE! But, no cheese for me today
ANOTHER stupid thing I didn't do when first diagnosed....I just now this week been trying to sign up with my local ALS (thats a joke...I have left voicemail and emailed...still no answer) and local MDA (lady is going to send me packet of papers to fill out and send back). I STUPIDLY thought I could call either place and request something from their loan closets.....WRONG....MDA told me I would need a request for item from my doctor.
This post should probably be in WHINE & CHEESE! But, no cheese for me today