Jennifer D
Active member
- Joined
- Dec 19, 2011
- Messages
- 74
- Diagnosis
- 03/2012
- Country
- US
- State
- New York
- City
- New York
Just got a call today from the visisting nurse who runs the ALS support group in the New York area, she invited me to attend my first support group tomorrow. I have so many emoitions right now just thinking about whether or not I will be able to keep it together. I'm so terrified of what the future holds for my husband during this horrible disease, I'm just sick thinking about my kids having to lose their father and seeing him decline at such a young age.
I hate to admit it, but I'm almost afraid to see if there are other people in the group who have more advanced ALS than my husband. I know he is not ready for this group yet, so I will go tomorrow and hopefully in the near future he will be ready to share in the support group as well.
Sorry for running on like a fool, It's just that when you live every day as normal as possible you can almost believe that this is not really happening and then you get a call from the ALS Association and it knocks the air out of me all over again!
I hate to admit it, but I'm almost afraid to see if there are other people in the group who have more advanced ALS than my husband. I know he is not ready for this group yet, so I will go tomorrow and hopefully in the near future he will be ready to share in the support group as well.
Sorry for running on like a fool, It's just that when you live every day as normal as possible you can almost believe that this is not really happening and then you get a call from the ALS Association and it knocks the air out of me all over again!