Re: hello from michigan
Thank you for the warm welcome. I didn't know about this forum until recently. I could have probably saved a lot of time with this forum. Unfortunately, my brother is unable to really get online like he use to. Depression and sickness is taking a toll on his life. To save time i took the information i posted on the general discussion and im going to paste it here below to help others in Michigan and hopefully in other states as well.
My brother is 47yrs old and was diagnosed in October 2011 and was told her had 3-5yrs but suddenly is January he was told he only has 6months to a year. His health got worse with each day that passed by. We all have spent our savings trying to make his life easier but theres only so much we can do. He needed a ramp really bad and we didnt know where to turn to so we looked around and heard about United Way ramp project with the help of home depot in Michigan. We applied and made many phone calls and finally they installed one last week.( It took 2months) We also needed a room lift so we contacted our local hospitals and found out University of Michigan Hospital has a program for a room lift. We filed for it and also received that. Also we got in contact with World Medical Relief and received a bathroom wheelchair. World Medical Relief has many equipment ranging from a cane to a hospital bed. They also have a prescription program, any medication that has a high copay or is not covered buy insurance and they carry it, they will dispense it to you for 8dollars. Also my brother has an electrical wheelchair that costs $26,300. The insurance and medicare covered $20,000 and we had to come up with $6,300, but then we were told to just get extra insurance which costs $430 a month to cover the $6,300 and any other copays we have. I dont know what the company is called but if you need it get in contact with me. Hope this helps! And i hope that anyone that suffers from ALS gets better as well as the families involved. If anyone knows about information to redo a bathroom to make it easier for an ALS patient please let me know.(my brother immobilized) Thanks