Mary-Lynn
New member
- Joined
- Nov 9, 2011
- Messages
- 6
- Reason
- Loved one DX
- Country
- US
- State
- MA
- City
- Brockton
I am new to this site. I am very grateful for the support.
My 53 year old brother was diagnosed with ALS in April of 2011. He is a hand therapist, a cyclist, and a photographer. He lives in NJ and I live in MA. We are very close, especially since the birth of his twin daughters 8 years ago.
The past two weeks he has declined significantly. He can no longer walk. His manual dexterity has diminished. Thank God he can still work, as he works in a PT/OT facility and has a lot of assistance. He has availed himself and his family to the services at the U Penn ALS Center. I am so thankful he hooked up with them.
This is not about me. But this week, I have been inconsolable in my grief about my brother.
I am sad and angry about the losses. Though I make frequent trips down to NJ to help out with the girls, I am sad that I cannot spend more time with him.
I'm sure so many of you have gone through this. How do you come to a place of acceptance and not let the grief rule your life? I am on meds for bipolar depression. I'm sure they help to a certain extent. But I miss him. And I am so sad.
My 53 year old brother was diagnosed with ALS in April of 2011. He is a hand therapist, a cyclist, and a photographer. He lives in NJ and I live in MA. We are very close, especially since the birth of his twin daughters 8 years ago.
The past two weeks he has declined significantly. He can no longer walk. His manual dexterity has diminished. Thank God he can still work, as he works in a PT/OT facility and has a lot of assistance. He has availed himself and his family to the services at the U Penn ALS Center. I am so thankful he hooked up with them.
This is not about me. But this week, I have been inconsolable in my grief about my brother.
I am sad and angry about the losses. Though I make frequent trips down to NJ to help out with the girls, I am sad that I cannot spend more time with him.
I'm sure so many of you have gone through this. How do you come to a place of acceptance and not let the grief rule your life? I am on meds for bipolar depression. I'm sure they help to a certain extent. But I miss him. And I am so sad.