My mom was als diagnoised in Sep 2010. She is limb onset follow with balbar symptoms,difficult swollowing, choke occasionally, slur speach but so far she is still doing ok. However recently she feels tired and shortness of breath especially when doing things e.g. She has hard time for bowel movement as i think it's because her belly muscle weakening and wasting. so seem she uses lot of energy on her toilet time.
I read from many posts that normally respiratory issue often start when you lay flat on your back for sleeping but my mom do not have that issue. She is ok sleep at night although Her fvc is 34% so we asked her to start using a bipap when she felt tired but seem this doesn't help solve her problem not sure if it's about the setting, we try the resmed vpap wirh S/T model. The doctor set IPAP =10 and EPAP=5 with back up rate at 12 times / minute and ramp = 15. We try to wear her bipap when she felt tires but she felt more suffocated than easier breathing. Would like to hear from you any advice ? Are there any body use this bipap model? Im in Thailand where we have very limited of als specialist who we can consult with. We have 7 days free trial the machine with mom before make decision if we want to buy it.