JoannaMorris
New member
- Joined
- Jan 9, 2012
- Messages
- 4
- Reason
- Loved one DX
- Diagnosis
- 01/2011
- Country
- IS
- State
- Jerusalem
- City
- Jerusalem
Dear All,
My son, aged, 12, has mild Nemaline Rod Myopathy and my mother recently last month from ALS. My uncle has inclusion body myostatis. I am wondering whether anyone else has these diseases in their family. It seems so freaky that we have these three diseases. We are going to begin genetic testing soon and I am very worried.
Wishing you all well,
Joanna
My son, aged, 12, has mild Nemaline Rod Myopathy and my mother recently last month from ALS. My uncle has inclusion body myostatis. I am wondering whether anyone else has these diseases in their family. It seems so freaky that we have these three diseases. We are going to begin genetic testing soon and I am very worried.
Wishing you all well,
Joanna