ALS and Nemaline Rod Myopathy

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JoannaMorris

New member
Joined
Jan 9, 2012
Messages
4
Reason
Loved one DX
Diagnosis
01/2011
Country
IS
State
Jerusalem
City
Jerusalem
Dear All,
My son, aged, 12, has mild Nemaline Rod Myopathy and my mother recently last month from ALS. My uncle has inclusion body myostatis. I am wondering whether anyone else has these diseases in their family. It seems so freaky that we have these three diseases. We are going to begin genetic testing soon and I am very worried.
Wishing you all well,
Joanna
 
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