charbran11
New member
- Joined
- Sep 14, 2011
- Messages
- 3
- Reason
- Loved one DX
- Country
- US
- State
- pa
- City
- waterford
I've only posted once before. A little background. In October my dad was diagnosed with als. Right now it is mostly affecting his arms/hands with weakness. Very minimal anywhere else so right now its only lower motor neuron disease. He has had symptoms since last Sept (2010). Yesterday he had a doc checkup and they asked if he's noticed any changes. He said in the last 2 months he's gotten a lot weaker on his arms. It's not affecting anywhere else that he is noticing yet. They are going to make him wear a bipap (i think) for night b/c he snores big time...but this is nit New he has always snored. Anyway, I am just beside myself with worry and sadness. I am 30 yrs old with 2 boys. The one has the most special relationship w my dad that I've ever seen. The other one us only 6 months and dad can only hold him like a couple min. I am devastated with what this is doing to dad and how my boys will be. I just love my dad so much and cannot imagine life without him or even with him seriously impaired. I know my mom will nit handle it all well. I just can't believe this us happening. And we know noone that has had this disease. The doc couldn't really tell us anything at all. We feel lost and helpless and hopeless. I've been diagnosed with post partum depression and am taking meds. I really don't know if I can handle this... We just don't know what to expect.