CGAR
Distinguished member
- Joined
- Oct 20, 2011
- Messages
- 120
- Reason
- PALS
- Diagnosis
- 10/2011
- Country
- CA
- State
- ON
- City
- ST. CATHARINES
Hi everyone,
This my first post.
I'm pretty excited to be here as I've learned so much from reading about everyone's experiences.
I just turned 40, and have been diagnosed with Bulbar ALS.
I'm married, have two kids, and love life.
Strange thing, I was diagnosed with ALS, by the ALS clinic in Hamilton, Canada.
After the diagnosis(about two weeks), I had a head MRI which the Dr. said won't show anything, but only a matter of routine.
During the follow up appointment he pulled up my MRI results, and I said, "let me guess, It came back fine!"
He was stunned and said, "no, not really"
It appears I have had a couple of strokes on the left side of my cerebellum.
Now, where once I had accepted the ALS diagnosis, now I am again taking a ride on the emotional rollercoster.
Obviously, we think all the symptoms are stroke related, but the Dr. says he won't take the ALS diagnosis back, only that the strokes could have been from a long time ago.
Doesn't seem right as I have always seemed healthy up until about June when my speech was affected and I started with weakness in my right arm/hand.
Anybody have any suggestions/comments/hope for us?
Cheers,
Casey
This my first post.
I'm pretty excited to be here as I've learned so much from reading about everyone's experiences.
I just turned 40, and have been diagnosed with Bulbar ALS.
I'm married, have two kids, and love life.
Strange thing, I was diagnosed with ALS, by the ALS clinic in Hamilton, Canada.
After the diagnosis(about two weeks), I had a head MRI which the Dr. said won't show anything, but only a matter of routine.
During the follow up appointment he pulled up my MRI results, and I said, "let me guess, It came back fine!"
He was stunned and said, "no, not really"
It appears I have had a couple of strokes on the left side of my cerebellum.
Now, where once I had accepted the ALS diagnosis, now I am again taking a ride on the emotional rollercoster.
Obviously, we think all the symptoms are stroke related, but the Dr. says he won't take the ALS diagnosis back, only that the strokes could have been from a long time ago.
Doesn't seem right as I have always seemed healthy up until about June when my speech was affected and I started with weakness in my right arm/hand.
Anybody have any suggestions/comments/hope for us?
Cheers,
Casey