worriedude
New member
- Joined
- Dec 24, 2006
- Messages
- 2
- Reason
- PALS
- Country
- IN
- State
- New Delhi
- City
- Delhi
Let me start with a brief history about myself.
I am a 23 year old Male.
In April 2005, i was diagnosed with Hodgkin's Lymphoma (A cancer of lymph glands). Radiotherapy and Chemotherapy were given (which included a steroid called Dexona). My post treatment scans were clean and i was declared to be in remission.
Everything was going well, when in July 2006, i got acute ITP (an autoimmune platelet disorder). I was given IVIG and Prednisone (starting with 60mg and then tapered) for 4 months. My blood report came back normal but i had anemia (low rbc count) for which i was given B12 injections.
Now as soon as i finished treatment, i noticed that i had a difficulty in walking. Not much to cause me much trouble in my daily routines, but the difficulty in walking was increasing day by day and i could feel the worsening in muscle strength of legs every single day intervals. That was early november. At about 15th november i visited my hematologist who treated me for ITP, and said that it could be Steroid induced myopathy. But nonetheless, he referred me to a Neurologist.
The neurologist said that he didnt think its steroid induced myopathy, and conducted a NCV (nerve conduction velocity) test, which showed Motor Axonal Peripheral Neuropathy.
I was given vit B12 injections for 10 days, but even after taking 5 injections, there was no improvement but the weakness continued to be worsening day after day as before. Now 5th December onwards, i could not walk without support.
I changed my neurologist, and he recommended redo of NCV and some other tests related to nerve conduction like brain functioning, senses etc. Surprisingly, every single test came back normal, even the NCV which was abnormal a few days ago. The doc said that either it could be because of vit B12 injections that i had, or maybe the previous NCV was not conducted properly. There was less possibility that the 5 injections made per. neuropathy disappear, as my muscle weakness was still increasing. Now i required wheelchair for intra-hospital travel.
The neurologist still diagnosed it as peripheral neuropathy and again given me B12 injections which are slightly stronger. However, there is no improvement in my condition.
So in a nutshell, a weakening of lower limbs which started 1.5 months ago, and woresening every single day, can it be ALS? I know that ALS is difficult to diagnose, but i am surprised my neurologist hasnt even ordered for an EMG test. Also, my weakeness is mainly in lower limbs (both legs) and very slight weakness in hands which is negligible.
Does ALS grow this fast? I mean that within 1.5 months i have come from walking 1/2 kms daily to now using wheelchair and person support to walk and travel. Since my NCV the second time was normal, i am more concerned that it is indeed ALS since i have heard that NCV is normal in ALS. Also, i am just 23 years ago, but i know that ALS can strike at any age, but in 20s is uncommon, specially with men?
I am a 23 year old Male.
In April 2005, i was diagnosed with Hodgkin's Lymphoma (A cancer of lymph glands). Radiotherapy and Chemotherapy were given (which included a steroid called Dexona). My post treatment scans were clean and i was declared to be in remission.
Everything was going well, when in July 2006, i got acute ITP (an autoimmune platelet disorder). I was given IVIG and Prednisone (starting with 60mg and then tapered) for 4 months. My blood report came back normal but i had anemia (low rbc count) for which i was given B12 injections.
Now as soon as i finished treatment, i noticed that i had a difficulty in walking. Not much to cause me much trouble in my daily routines, but the difficulty in walking was increasing day by day and i could feel the worsening in muscle strength of legs every single day intervals. That was early november. At about 15th november i visited my hematologist who treated me for ITP, and said that it could be Steroid induced myopathy. But nonetheless, he referred me to a Neurologist.
The neurologist said that he didnt think its steroid induced myopathy, and conducted a NCV (nerve conduction velocity) test, which showed Motor Axonal Peripheral Neuropathy.
I was given vit B12 injections for 10 days, but even after taking 5 injections, there was no improvement but the weakness continued to be worsening day after day as before. Now 5th December onwards, i could not walk without support.
I changed my neurologist, and he recommended redo of NCV and some other tests related to nerve conduction like brain functioning, senses etc. Surprisingly, every single test came back normal, even the NCV which was abnormal a few days ago. The doc said that either it could be because of vit B12 injections that i had, or maybe the previous NCV was not conducted properly. There was less possibility that the 5 injections made per. neuropathy disappear, as my muscle weakness was still increasing. Now i required wheelchair for intra-hospital travel.
The neurologist still diagnosed it as peripheral neuropathy and again given me B12 injections which are slightly stronger. However, there is no improvement in my condition.
So in a nutshell, a weakening of lower limbs which started 1.5 months ago, and woresening every single day, can it be ALS? I know that ALS is difficult to diagnose, but i am surprised my neurologist hasnt even ordered for an EMG test. Also, my weakeness is mainly in lower limbs (both legs) and very slight weakness in hands which is negligible.
Does ALS grow this fast? I mean that within 1.5 months i have come from walking 1/2 kms daily to now using wheelchair and person support to walk and travel. Since my NCV the second time was normal, i am more concerned that it is indeed ALS since i have heard that NCV is normal in ALS. Also, i am just 23 years ago, but i know that ALS can strike at any age, but in 20s is uncommon, specially with men?