Old 09-12-2011, 03:54 PM #1 (permalink)
trfogey's Avatar
Extremely Helpful Member
 
Join Date: 2008
City: Raleigh
State: NC
Country: US
Diagnosed: 07/2007
Interest: I have been diagnosed with ALS.
Posts: 2,042
trfogey is on a very distinguished road
trfogey trfogey is offline
Extremely Helpful Member
trfogey's Avatar
Join Date: 2008
City: Raleigh
State: NC
Country: US
Diagnosed: 07/2007
Interest: I have been diagnosed with ALS.
Posts: 2,042
trfogey is on a very distinguished road
Default Send a message to the US Senate

OK, US PALS, CALS, and friends. It's time to send a reminder to our US Senators that the ALS serial killer is still on the loose and our dedicated defenders need more resources to hunt it down and collar it

Seriously, please drop a note to your state's US Senators to prod them into supporting this program.

https://www.capwiz.com/alsa/issues/a...ertid=53485551
trfogey is offline  
Old 09-13-2011, 09:30 AM #2 (permalink)
Josall's Avatar
New Member
 
Join Date: 2010
City: NORMAN
State: OKLAHOMA
Country: US
Diagnosed: 12/2007
Interest: I have been diagnosed with ALS.
Posts: 33
Josall is on a distinguished road
Josall Josall is offline
New Member
Josall's Avatar
Join Date: 2010
City: NORMAN
State: OKLAHOMA
Country: US
Diagnosed: 12/2007
Interest: I have been diagnosed with ALS.
Posts: 33
Josall is on a distinguished road
Default Re: Send a message to the US Senate

Just sent..
Josall is offline  
Old 09-13-2011, 09:46 AM #3 (permalink)
Ms. Pie's Avatar
Very Helpful Member
 
Join Date: 2011
City: Colorado
State: CO
Country: US
Diagnosed: 10/2010
Interest: I have been diagnosed with ALS.
Posts: 1,800
Ms. Pie is on a distinguished road
Ms. Pie Ms. Pie is offline
Very Helpful Member
Ms. Pie's Avatar
Join Date: 2011
City: Colorado
State: CO
Country: US
Diagnosed: 10/2010
Interest: I have been diagnosed with ALS.
Posts: 1,800
Ms. Pie is on a distinguished road
Default Re: Send a message to the US Senate

Me too yesterday. Thanks Allen!
Ms. Pie is offline  
Old 09-13-2011, 10:06 AM #4 (permalink)
dldred's Avatar
Senior Member
 
Join Date: 2009
City: Chateaugay
State: NY
Country: US
Diagnosed: 03/2009
Interest: I lost a loved one to ALS/MND.
Posts: 529
dldred is on a distinguished road
dldred dldred is offline
Senior Member
dldred's Avatar
Join Date: 2009
City: Chateaugay
State: NY
Country: US
Diagnosed: 03/2009
Interest: I lost a loved one to ALS/MND.
Posts: 529
dldred is on a distinguished road
Default Re: Send a message to the US Senate

message sent.

Dana
dldred is offline  
Old 09-13-2011, 10:42 AM #5 (permalink)
New Member
 
Join Date: 2011
City: Middletown
State: Ct
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 87
Kathylund is on a distinguished road
Kathylund Kathylund is offline
New Member
Join Date: 2011
City: Middletown
State: Ct
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 87
Kathylund is on a distinguished road
Default Re: Send a message to the US Senate

Also sent...
Kathylund is offline  
Old 09-13-2011, 01:25 PM #6 (permalink)
asantiago's Avatar
Member
 
Join Date: 2009
City: Glenpool
State: OK
Country: US
Interest: ALS is making its way through my family
Posts: 278
asantiago is on a distinguished road
asantiago asantiago is offline
Member
asantiago's Avatar
Join Date: 2009
City: Glenpool
State: OK
Country: US
Interest: ALS is making its way through my family
Posts: 278
asantiago is on a distinguished road
Default Re: Send a message to the US Senate

Done. It makes me sad the view count on this thread is half of most of the others posted in the same time frame. Everyone feels so helpless but this is one EASY thing we can do to make a difference! Thanks for posting it!
asantiago is offline  
Old 09-13-2011, 03:47 PM #7 (permalink)
asantiago's Avatar
Member
 
Join Date: 2009
City: Glenpool
State: OK
Country: US
Interest: ALS is making its way through my family
Posts: 278
asantiago is on a distinguished road
asantiago asantiago is offline
Member
asantiago's Avatar
Join Date: 2009
City: Glenpool
State: OK
Country: US
Interest: ALS is making its way through my family
Posts: 278
asantiago is on a distinguished road
Default Re: Send a message to the US Senate

Also, there is a link to post it to your facebook if you have an account be sure to do that and ask your friends to write. I have already 10 people who have done the same in just the last hour. Strength in numbers!
asantiago is offline  
Old 09-13-2011, 06:25 PM #8 (permalink)
Whitsend's Avatar
Member
 
Join Date: 2008
City: Concord
State: NC
Country: US
Diagnosed: 01/2009
Interest: I have been diagnosed with ALS.
Posts: 105
Whitsend is on a distinguished road
Whitsend Whitsend is offline
Member
Whitsend's Avatar
Join Date: 2008
City: Concord
State: NC
Country: US
Diagnosed: 01/2009
Interest: I have been diagnosed with ALS.
Posts: 105
Whitsend is on a distinguished road
Default Re: Send a message to the US Senate

Done! Whitsend
Whitsend is offline  
Old 09-13-2011, 06:34 PM #9 (permalink)
Extremely Helpful Member
 
Join Date: 2006
Country: HM
Interest: Other
Posts: 5,205
brooksea is on a very distinguished road
brooksea brooksea is offline
Extremely Helpful Member
Join Date: 2006
Country: HM
Interest: Other
Posts: 5,205
brooksea is on a very distinguished road
Default Re: Send a message to the US Senate

did mine when I got the email notification from ALSA. Hope others will too!
brooksea is offline  
Old 09-13-2011, 08:43 PM #10 (permalink)
Miss's Avatar
Very Helpful Member
 
Join Date: 2010
City: Way Down South
State: In the Land of Cotton
Country: US
Diagnosed: 04/2010
Interest: I lost a loved one to ALS/MND.
Posts: 1,762
Miss is on a distinguished road
Miss Miss is offline
Very Helpful Member
Miss's Avatar
Join Date: 2010
City: Way Down South
State: In the Land of Cotton
Country: US
Diagnosed: 04/2010
Interest: I lost a loved one to ALS/MND.
Posts: 1,762
Miss is on a distinguished road
Default Re: Send a message to the US Senate

Message sent.
Miss is offline  
Old 09-13-2011, 09:04 PM #11 (permalink)
Member
 
Join Date: 2011
City: Greensburg
State: Pennsylvania
Country: US
Diagnosed: 05/2011
Interest: I am a family member of someone with ALS/MND.
Posts: 385
KissJ is on a distinguished road
KissJ KissJ is offline
Member
Join Date: 2011
City: Greensburg
State: Pennsylvania
Country: US
Diagnosed: 05/2011
Interest: I am a family member of someone with ALS/MND.
Posts: 385
KissJ is on a distinguished road
Default Re: Send a message to the US Senate

Thank you! Sent it...and sent to 12 of my friends. Going to send it to all my friends!
KissJ is offline  
Old 09-13-2011, 11:20 PM #12 (permalink)
notgivnup's Avatar
Senior Member
 
Join Date: 2010
City: country
State: Darkside of Moon
Country: OS
Diagnosed: 11/2010
Interest: I have been diagnosed with ALS.
Posts: 816
notgivnup is on a distinguished road
notgivnup notgivnup is offline
Senior Member
notgivnup's Avatar
Join Date: 2010
City: country
State: Darkside of Moon
Country: OS
Diagnosed: 11/2010
Interest: I have been diagnosed with ALS.
Posts: 816
notgivnup is on a distinguished road
Default Re: Send a message to the US Senate

Thank You, sent mine also.
notgivnup is offline  
Old 09-13-2011, 11:25 PM #13 (permalink)
retiredmus2010's Avatar
Member
 
Join Date: 2011
City: Princess Anne
State: Maryland
Country: US
Diagnosed: 04/2010
Interest: I am a caregiver for someone with ALS/MND.
Posts: 164
retiredmus2010 is on a distinguished road
retiredmus2010 retiredmus2010 is offline
Member
retiredmus2010's Avatar
Join Date: 2011
City: Princess Anne
State: Maryland
Country: US
Diagnosed: 04/2010
Interest: I am a caregiver for someone with ALS/MND.
Posts: 164
retiredmus2010 is on a distinguished road
Default Re: Send a message to the US Senate

Thank you so much for the info. Have sent mine and asked 6 friends to please contact our senators. I will be asking my entire email address.
I challenge all of the readers, lurkers and registered members of this forum: CONTACT YOUR SENATORS NOW! Please put a little personal message with your request. It will only take minutes of your time. THIS IS HOW WE CAN HELP OUR LOVED ONES. Our leaders MUST know how this disease affects our lives as caregivers and how humbling and CRUEL this is for our family members. TAKE THE CHALLENGE.
G.
retiredmus2010 is offline  
Old 09-14-2011, 05:14 AM #14 (permalink)
New Member
 
Join Date: 2011
City: Groveland
State: Florida
Country: US
Diagnosed: 05/2009
Interest: I lost a loved one to ALS/MND.
Posts: 65
apollick is on a distinguished road
apollick apollick is offline
New Member
Join Date: 2011
City: Groveland
State: Florida
Country: US
Diagnosed: 05/2009
Interest: I lost a loved one to ALS/MND.
Posts: 65
apollick is on a distinguished road
Default Re: Send a message to the US Senate

My message was sent along with a personalized message.
apollick is offline  
Old 09-14-2011, 07:50 AM #15 (permalink)
Member
 
Join Date: 2011
City: Mtn. Home
State: Ar
Country: US
Diagnosed: 01/2007
Interest: I have been diagnosed with ALS.
Posts: 391
caldona is on a distinguished road
caldona caldona is offline
Member
Join Date: 2011
City: Mtn. Home
State: Ar
Country: US
Diagnosed: 01/2007
Interest: I have been diagnosed with ALS.
Posts: 391
caldona is on a distinguished road
Default Re: Send a message to the US Senate

Sent my and added to my facebook page
caldona is offline  
Closed Thread

Tags
alsa, cals, senate


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Senate passed the Steve Gleason Act (S. 984)! MaxEidswick General Discussion About ALS/MND 7 04-24-2015 11:35 AM
Cannot send a new message or reply summerguy2007 Suggestions, Problems or Bugs 1 06-06-2014 10:28 AM
How did you send your child to college? NotALS! General Discussion About ALS/MND 4 04-29-2013 03:28 AM
How can you send ....... Toto's Dorothy Other 3 04-17-2012 12:52 AM
Senate Committee approves $6 Million retiredmus2010 General Discussion About ALS/MND 1 09-27-2011 07:56 PM
Re: How do I send a messge on this site keinale Do I Have ALS? Is This ALS? 13 01-08-2010 09:27 PM
How do I send a private message? BrianD Suggestions, Problems or Bugs 5 09-23-2009 10:28 PM
Please send email to support Bill # S.1382 indigosd People With ALS - "PALS" 17 09-08-2009 02:41 PM
Lifespan Respite Care Act Passed by the Senate teesa1970 Current Caregivers (CALS) 0 12-09-2006 12:27 PM


All times are GMT -5. The time now is 02:52 AM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016