MrsClose1
Member
- Joined
- Jun 14, 2011
- Messages
- 13
- Reason
- Loved one DX
- Diagnosis
- 01/2011
- Country
- US
- State
- CA
- City
- Visalia
Hello, my husband was diagnosed with PBP in January 2011. He started losing his voice in September 2010. Our first visit to the neurologist he told my husband he had a stroke by our third visit. I could tell by the Dr. demeanor that something else was terribly wrong. He sent us to the ALS Clinic to a Dr who specialized in this disease. My husband is a strong man his arms and legs were perfectly fine. The only thing that he had complained about over the course of 5 years were his knees and lots of extreme cramping all over his body especially the legs and back muscles. Here we are now June 2011 and my husband speech is no longer, his legs are starting to weaken, he needs a peg eating & taking meds is taking a toll. My question to you is. I would like to take some time off from work to spend with him while he is still able to walk. I am just afraid that when I go back to work this will depress him more or should I just wait till he really needs me at home. So confused.
