cervus
Senior member
- Joined
- Mar 18, 2011
- Messages
- 935
- Reason
- Lost a loved one
- Diagnosis
- 11/2010
- Country
- CA
- State
- AB
- City
- Leduc County
My husband Bob has been using a BiPap since April and has tolerated it quite well so far. We've had a few unusual ALS related events recently - those full body spasms I mentioned a few weeks ago followed by shallow breathing for the night, and then we were trying to transfer him from the toilet to his wheelchair but he just was too weak to help at all with my daughter and I helping him with a transfer belt and for safety sake, had to let him drop slowly to the floor so we could figure out a way to move him to the track in our bathroom. He didn't fall. Anyway, just after he was on the floor he passed out for a little while - maybe 30-40 seconds. His eyes were open but was unresponsive. Scary but he came to and was fine after that. Then last week we had to perform the Heimlich on him - flook choking. Now, for the last three days he's been waking up with headaches and is a bit more tired during the day. Of course it's the weekend - we gave the headache thing a couple of days to see if it was a random headache so we'll have to wait till Monday to contact the ALS Clinic. I guess what I'm wondering is if it's a BiPap adjustment thing for expiratory flow OR? Any advice or tips based on experience? Thanks again! Yasmin
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