cervus
Senior member
- Joined
- Mar 18, 2011
- Messages
- 935
- Reason
- Lost a loved one
- Diagnosis
- 11/2010
- Country
- CA
- State
- AB
- City
- Leduc County
My husband, Bob, was diagnosed with ALS on 08 November, 2010. He'd had symptoms for 3 1/2 prior to diagnosis. He had limb onset. His FVC and peak cough flow in January was 70% and 440 litres/minute. His FVC is now 43% (give or take with poor lip seal), peak cough flow is 120 now. He uses a BiPAP at night and if he naps during the day. He's been in a wheel chair since December with some use left in his right arm. From experience on this forum, does anybody know what this means? Our ALS Clinic team at the U of A don't seem to want to predict anything and I know they can't, as is the same generally speaking. Yes, everybody is different, etc. BUT....it's difficult. I don't know if I want to know or what it is that I'm asking.....but I know people here understand. Any hints as to where we are? His progression since last July has been very rapid, even according to the team. Thanks!