Magpuff
Active member
- Joined
- Jun 5, 2011
- Messages
- 71
- Reason
- PALS
- Diagnosis
- 05/2011
- Country
- US
- State
- Florida
- City
- Jacksonville Beach
I have just been diagnosed with ALS in May after 6 months of tests. My Neurologist recommends starting Rilutek and I purchased the first prescription for a monthly charge of $328.00. I find out also that when I reach the "doughnut" hole, the medicine will cost me over $900.00 per month. As of now I am just staring at the "golden bottle".
On Rilutek site they will discount $100.00 per month unless you are on Medicare (which I am) or if you are poor then they will supplement. At this rate I will certainly be poor soon.
Other sites mention getting this drug for only $25.00 or at least underthe $100.00 range.
I'm not sure I can afford this along with all of the other ALS related costs. What are other people doing?
On Rilutek site they will discount $100.00 per month unless you are on Medicare (which I am) or if you are poor then they will supplement. At this rate I will certainly be poor soon.
Other sites mention getting this drug for only $25.00 or at least underthe $100.00 range.
I'm not sure I can afford this along with all of the other ALS related costs. What are other people doing?