TNTTony7
Active member
- Joined
- May 17, 2011
- Messages
- 53
- Diagnosis
- 05/2011
- Country
- US
- State
- VA
- City
- Ewing
Hello All! I don't know where to start. This mess started with a back injury, well I kept progressing and getting worse, went from a cane to a walker, and now a wheel chair. I had a constant headache, clumsiness (fell often), then trouble swallowing. My arms and hands are starting to be affected. My doctor wouldn't do anything, in fact he kept saying that no way was it neurological. My wife and I decided to switch VA hospitals. Well it took 5 months for me to be assigned a primary care doctor. Long story making short:lol:! Anyways 2 weeks after my wife and I got married (March 12th) I saw my new doctor for the first time. Withing ten minutes she sent me to the ER to see a neurologist. Well got admitted and they ran the battery of tests. Diagnosis was not atypical ALS, to be seen by the neurologist in 3 months. Well within a month I have gotten worse, speech, and arms way weak. I went back to my primary doctor and after she talked to the neurologist I am now diagnosed with ALS. When I was in the hospital 4 different neurologists saw me each one requested another one, till they assigned me to a University of Kentucky head of neurology. Anyways I am so glad that I found this place I have felt so alone. My wife is very sensitive (she has recently lost her brother,sister, mother and also our dog, brandy. So she is having a hard time dealing with this. We live 3 hours away from the hospital, so am also facing a hard decision of having to move to be closer to the hospital. She knows I'm getting worse but doesn't want to talk about it. She is great at giving me assistance. Anyways I have felt so alone (am crying while typing this). I am a veteran of Desert Storm and the Panama Conflict, and would rather have taken a bullet, then put my wife through this. I do not fear death, I fear my wife suffering while I am slowly or not so slowly dying. Anyways I know it doesn't sound like it, but I am in pretty good spirits most of the time. I have read a lot of the posts and can tell this site is full of caring people. I thank you all for finally found a place where I can get all this off my chest.
thank you all
Tony
thank you all
Tony