bad night

[cukita99]

i had a very bad night after reading about phils death. i dont know why i took it so hard. he and joel always were so willing to live and gave me hope. im not scare to die, i just worry about my son. it was to late to teach him things by the time i was diagnosed. im trying to type him a letter n i guess i should plan my funeral but i feel like im giving up. im not ready yet.

 

[twinmommie72]

I understand how you feel. I have young children as well. Planing your final wishes is not giving up. I did the same while crying the entire time. I feel better that it is done. This disease takes so much away from us, however it will never take the love we have inside. I know my children will treasure the letters and other things I've done years from now, however I'm happy I could do that for them. If a cure comes for us, we can simply leave our letters for later. Please know you aren't alone. Your thoughts are all of our thoughts in this transition.

Hugs to you...

 

[notme]

I'm sorry you're having a bad time. If you're able to talk still--make a tape for your son--if not, then the letter is good.

It's responsible to plan for final arrangements if there's something specific you want--there are insurance plans that are for final arrangements. Do it now if it'll make you feel better--but only if it's something you feel you need to handle yourself at this time--it's not giving up in my opinion.

generally, it's a bad idea to make any major decisions when we're in the grieving process, though. Maybe talk to an ALSa counselor about how you're feeling?

One thing I know about grief--bottling things inside will definitely NOT be helpful. Hugs and best wishes

 

[LizT]

my PALS preplanned his funeral as well. and he's still kicking and screaming (figuretively) almost 9 years later. it isnt giving up.
im sorry you feel such sorrow because of Phil's passing. it is truly a sad thing.

 

[cukita99]

thank u ive done a will n all paper work but not actual funeral arrangements. my son is 21 but still not ready to leave him.

 

[Momma]

I'm having my fair share of bad nights also. I am so sorry you have to go through this. I have 5 kids ages 22, 17, 16, 13, and 10. Sometimes it's overwhelming. I find prayer and truly for the first time, just talking to God like he was sitting in the room right there with me, really helps.

 

[cukita99]

i know what u mean, i talk to him everyday.

 

[flower]

hello I am so sorry about your night. I am sorry to hear about phil i did not know I have not been on because i have had some kind of bug and feeling sorry for myself. We all want to quit at times. I talk to hopice yesterday talk about gloomy but they would not have me . I am on trilogy,vent mode , but I am sort glad I am not to give up yet. I was boohooing all afternoon,but today a new day in CHRISTand I am glad iI am here to enjoy it