Phil's wife
Distinguished member
- Joined
- Apr 19, 2010
- Messages
- 141
- Reason
- Lost a loved one
- Diagnosis
- 05/2010
- Country
- US
- State
- NC
- City
- Wake Forest
We are trying to make a decision whether to continue my husband's chemotherapy for stage 4 kidney cancer or not. He has been on it since Nov last year. We are concerned about his quality of life due to him staying in bed and sleeping so much. The chemo is a daily pill he takes for 4 weeks and then has 2 weeks off and he does seem a lot more tired while on the chemo, but I can't be 100% sure how much can be contributed to chemo or coincidence.
So, please speak up if you know, are or have known an ALS patient who routinely sleeps for 15 hours a night and is overall in bed at least 3/4 of the rest of the day.
Our hospice doctor told me today the more rapid progressions seem to cause the patient to be more bed ridden and have more sleep. My husband is progressing quickly.
Such a tough decision to make....
So, please speak up if you know, are or have known an ALS patient who routinely sleeps for 15 hours a night and is overall in bed at least 3/4 of the rest of the day.
Our hospice doctor told me today the more rapid progressions seem to cause the patient to be more bed ridden and have more sleep. My husband is progressing quickly.
Such a tough decision to make....