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Howdy

Active member
Joined
Jun 22, 2006
Messages
65
Reason
PALS
Country
US
State
In
City
Bloomfield
Hello,

Below are results of the ALS SURVEY as of March 28, 2011
Howdy

Viewed
364 Started
285 Completed
187 Completion Rate
65.61% Drop Outs (After S! tarting)
&nb sp; 98 Average Time to Complete Survey
13 minutes




Are you male or female?
Answer Count Percent 20% 40% 60% 80% 100%

1. Male 95 57.93%

2. Female 69 42.07%

Total 164 100%
Mean : 1.421 ! Confidence Interval @ 95% : [1.345 - 1.497] Standard Deviation : 0.495 Standard Error : 0.039



What type of MMD do you have?
Answer Count Percent 20% 40% 60% 80% 100%

1. ALS 141 88.12%

2. PLS 14 8.75%

3. PMA 5 3.12%

Total 160 100%
Mean : 1.150 ! Confidence Interval @ 95% : [1.082 - 1.218] Standard Deviation : 0.437 Standard Error : 0.035



Where did your symtoms start?
Answer Count Percent 20% 40% 60% 80% 100%

1. Arm 49 31.21%

2. Leg 71 45.22%

3. Bulbar 31 19.75%

4. Other 6 3.82%

Total 157 100%
Mean : 1.962 ! Confidence Interval @ 95% : [1.834 - 2.089] Standard Deviation : 0.816 Standard Error : 0.065



Is your progression fast or slow?
Answer Count Percent 20% 40% 60% 80% 100%

1. Fast 43 27.39%

2. Slow 114 72.61%

Total 157 100%
Mean : 1.726 ! Confidence Interval @ 95% : [1.656 - 1.796] Standard Deviation : 0.447 Standard Error : 0.036



Prior to diagnosis did you live in the country, city or both?
Answer Count Percent 20% 40% 60% 80% 100%

1. Country 35 21.47%

2. City 75 46.01%

3. Both 53 32.52%

Total 163 100%
Mean : 2.110 ! Confidence Interval @ 95% : [1.999 - 2.222] Standard Deviation : 0.729 Standard Error : 0.057



What type of house did you live in?
Answer Count Percent 20% 40% 60% 80% 100%

1. With basement 86 53.09%

2. Without basement 45 27.78%

3. Both 31 19.14%

Total 162 100%
Mean : 1.660 ! Confidence Interval @ 95% : [1.540 - 1.781] Standard Deviation : 0.781 Standard Error : 0.061



What type of floors in your house?
Answer Count Percent 20% 40% 60% 80% 100%

1. Wood 102 33.89%

2. Carpet 108 35.88%

3. Vinyl 45 14.95%

4. Concrete 31 10.30%

5. Other 15 4.98%

Total 301 100%
Mean : 2.166 ! Confidence Interval @ 95% : [2.036 - 2.296] Standard Deviation : 1.151 Standard Error : 0.066



What type of walls in your house?
Answer Count Percent 20% 40% 60% 80% 100%

1. Drywall painted 132 61.40%

2. Plaster and lath 49 22.79%

3. Paneling 25 11.63%

4. Other 9 4.19%

Total 215 100%
Mean : 1.586 ! Confidence Interval @ 95% : [1.472 - 1.700] Standard Deviation : 0.854 Standard Error : 0.058



What type of heat in your house?
Answer Count Percent 20% 40% 60% 80% 100%

1. Wood 26 11.16%

2. Gas 106 45.49%

3. Oil 33 14.16%

4. Coal 5 2.15%

5. Electric 55 23.61%

6. Other 8 3.43%

Total 233 100%
Mean : 2.918 ! Confidence Interval @ 95% : [2.729 - 3.108] Standard Deviation : 1.476 Standard Error : 0.097



What type of water source in your house?
Answer Count Percent 20% 40% 60% 80% 100%

1. Spring 9 4.97%

2. Well 42 23.20%

3. City 126 69.61%

4. Other 4 2.21%

Total 181 100%
Mean : 2.691 ! Confidence Interval @ 95% : [2.603 - 2.778] Standard Deviation : 0.599 Standard Error : 0.045



What type water lines in the house?
Answer Count Percent 20% 40% 60% 80% 100%

1. Copper 84 54.90%

2. Steel 15 9.80%

3. PVC 45 29.41%

4. Others 9 5.88%

Total 153 100%
Mean : 1.863 ! Confidence Interval @ 95% : [1.699 - 2.026] Standard Deviation : 1.033 Standard Error : 0.083



How old was your house prior to your diagnosis?
Answer Count Percent 20% 40% 60% 80% 100%

1. 50 years or older 52 31.71%

2. 26 to 49 years old 43 26.22%

3. 25 years or less 69 42.07%

Total 164 100%
Mean : 2.104 ! Confidence Interval @ 95% : [1.973 - 2.235] Standard Deviation : 0.855 Standard Error : 0.067



Did you ever raise a garden?
Answer Count Percent 20% 40% 60% 80% 100%

1. Vegetable 52 32.10%

2. Flower 62 38.27%

3. None 48 29.63%

Total 162 100%
Mean : 1.975 ! Confidence Interval @ 95% : [1.854 - 2.097] Standard Deviation : 0.788 Standard Error : 0.062



Did you ever use garden or yard spray?
Answer Count Percent 20% 40% 60% 80% 100%

1. Garden spray 48 30.19%

2. Yard spray 53 33.33%

3. None 58 36.48%

Total 159 100%
Mean : 2.063 ! Confidence Interval @ 95% : [1.936 - 2.190] Standard Deviation : 0.817 Standard Error : 0.065



Did you ever paint or varnish?
Answer Count Percent 20% 40% 60% 80% 100%

1. Yes 116 71.17%

2. No 6 3.68%

3. Very little 41 25.15%

Total 163 100%
Mean : 1.540 ! Confidence Interval @ 95% : [1.406 - 1.673] Standard Deviation : 0.870 Standard Error : 0.068



Have you ever worked around chemicals?
Answer Count Percent 20% 40% 60% 80% 100%

1. Yes 91 55.83%

2. No 72 44.17%

Total 163 100%
Mean : 1.442 ! Confidence Interval @ 95% : [1.365 - 1.518] Standard Deviation : 0.498 Standard Error : 0.039



Ever live on or close to a farm?
Answer Count Percent 20% 40% 60% 80% 100%

1. Lived on a farm 29 17.90%

2. Lived near a farm 46 28.40%

3. No 87 53.70%

Total 162 100%
Mean : 2.358 ! Confidence Interval @ 95% : [2.240 - 2.476] Standard Deviation : 0.769 Standard Error : 0.060



Ever live near a factory?
Answer Count Percent 20% 40% 60% 80% 100%

1. Yes 40 25.16%

2. No 119 74.84%

Total 159 100%
Mean : 1.748 ! Confidence Interval @ 95% : [1.681 - 1.816] Standard Deviation : 0.435 Standard Error : 0.035



Ever use insect spray?
Answer Count Percent 20% 40% 60% 80% 100%

1. Some 73 44.51%

2. A lot 21 12.80%

3. Very Little 59 35.98%

4. Never 11 6.71%

Total 164 100%
Mean : 2.049 ! Confidence Interval @ 95% : [1.890 - 2.208] Standard Deviation : 1.038 Standard Error : 0.081



Have you ever had mold or fungus in your house?
Answer Count Percent 20% 40% 60% 80% 100%

1. Mold 65 39.88%

2. Fungus 6 3.68%

3. No 92 56.44%

Total 163 100%
Mean : 2.166 ! Confidence Interval @ 95% : [2.017 - 2.315] Standard Deviation : 0.970 Standard Error : 0.076



Have you ever worked in a hardware store?
Answer Count Percent 20% 40% 60% 80% 100%

1. Yes 8 5.06%

2. No 150 94.94%

Total 158 100%
Mean : 1.949 ! Confidence Interval @ 95% : [1.915 - 1.984] Standard Deviation : 0.220 Standard Error : 0.017



Have you ever worked in a paint store?
Answer Count Percent 20% 40% 60% 80% 100%

1. Yes 4 2.47%

2. No 158 97.53%

Total 162 100%
Mean : 1.975 ! Confidence Interval @ 95% : [1.951 - 1.999] Standard Deviation : 0.156 Standard Error : 0.012



Have you ever worked in an Auto Garage?
Answer Count Percent 20% 40% 60% 80% 100%

1. Yes 20 12.27%

2. No 143 87.73%

Total 163 100%
Mean : 1.877 ! Confidence Interval @ 95% : [1.827 - 1.928] Standard Deviation : 0.329 Standard Error : 0.026



Have you ever worked in a garden supply store?
Answer Count Percent 20% 40% 60% 80% 100%

1. Yes 8 4.94%

2. No 154 95.06%

Total 162 100%
Mean : 1.951 ! Confidence Interval @ 95% : [1.917 - 1.984] Standard Deviation : 0.217 Standard Error : 0.017



Have you ever worked in a gas station?
Answer Count Percent 20% 40% 60% 80% 100%

1. Yes 16 9.88%

2. No 146 90.12%

Total 162 100%
Mean : 1.901 ! Confidence Interval @ 95% : [1.855 - 1.947] Standard Deviation : 0.299 Standard Error : 0.024



Have you ever worked in a restaurant?
Answer Count Percent 20% 40% 60% 80% 100%

1. Yes 61 37.89%

2. No 100 62.11%

Total 161 100%
Mean : 1.621 ! Confidence Interval @ 95% : [1.546 - 1.696] Standard Deviation : 0.487 Standard Error : 0.038



Have you ever worked as a fire fighter?
Answer Count Percent 20% 40% 60% 80% 100%

1. Yes 5 3.16%

2. No 153 96.84%

Total 158 100%
Mean : 1.968 ! Confidence Interval @ 95% : [1.941 - 1.996] Standard Deviation : 0.176 Standard Error : 0.014



Have you ever worked on construction?
Answer Count Percent 20% 40% 60% 80% 100%

1. Yes 44 27.33%

2. No 117 72.67%

Total 161 100%
Mean : 1.727 ! Confidence Interval @ 95% : [1.658 - 1.796] Standard Deviation : 0.447 Standard Error : 0.035



If yes, to construction, what types have you worked?
Answer Count Percent 20% 40% 60% 80% 100%

1. Carpenter 21 36.21%

2. Electrician 7 12.07%

3. Plumber Welder 8 13.79%

4. Other 22 37.93%

Total 58 100%
Mean : 2.534 ! Confidence Interval @ 95% : [2.193 - 2.876] Standard Deviation : 1.327 Standard Error : 0.174



Have you ever used any of the following?
Answer Count Percent 20% 40% 60% 80% 100%

1. Pesticides 74 33.79%

2. Herbicides 53 24.20%

3. Insecticides 87 39.73%

4. Other 5 2.28%

Total 219 100%
Mean : 2.105 ! Confidence Interval @ 95% : [1.985 - 2.225] Standard Deviation : 0.905 Standard Error : 0.061



Have you ever lived with someone that has worked in any of the above?
Answer Count Percent 20% 40% 60% 80% 100%

1. Yes 40 25.32%

2. No 118 74.68%

Total 158 100%
Mean : 1.747 ! Confidence Interval @ 95% : [1.679 - 1.815] Standard Deviation : 0.436 Standard Error : 0.035



Did you ever use hair spray?
Answer Count Percent 20% 40% 60% 80% 100%

1. A lot 25 15.53%

2. Very little 62 38.51%

3. Never 74 45.96%

Total 161 100%
Mean : 2.304 ! Confidence Interval @ 95% : [2.192 - 2.416] Standard Deviation : 0.725 Standard Error : 0.057



Have you ever worked around any of the following?
Answer Count Percent 20% 40% 60% 80% 100%

1. Aluminum 25 24.04%

2. Mercury 12 11.54%

3. Lead 22 21.15%

4. Arsenic 8 7.69%

5. Copper 24 23.08%

6. Other 13 12.50%

Total 104 100%
Mean : 3.317 ! Confidence Interval @ 95% : [2.977 - 3.657] Standard Deviation : 1.770 Standard Error : 0.174



Were you ever in the military?
Answer Count Percent 20% 40% 60% 80% 100%

1. Yes 26 16.05%

2. No 136 83.95%

Total 162 100%
Mean : 1.840 ! Confidence Interval @ 95% : [1.783 - 1.896] Standard Deviation : 0.368 Standard Error : 0.029



If yes to miliary, what branch?
Answer Count Percent 20% 40% 60% 80% 100%

1. Army 16 51.61%

2. Marines 0 0.00%

3. Navy 4 12.90%

4. Air Force 6 19.35%

5. Other 5 16.13%

Total 31 100%
Mean : 2.484 ! Confidence Interval @ 95% : [1.903 - 3.065] Standard Deviation : 1.651 Standard Error : 0.296



Have you lived with someone while they were in the miliary?
Answer Count Percent 20% 40% 60% 80% 100%

1. Yes 22 14.01%

2. No 135 85.99%

Total 157 100%
Mean : 1.860 ! Confidence Interval @ 95% : [1.805 - 1.914] Standard Deviation : 0.348 Standard Error : 0.028



Ever have any childhood disease's?
Answer Count Percent 20% 40% 60% 80% 100%

1. Yes 139 86.34%

2. NO 22 13.66%

Total 161 100%
Mean : 1.137 ! Confidence Interval @ 95% : [1.083 - 1.190] Standard Deviation : 0.345 Standard Error : 0.027



If yes, which ones?
Answer Count Percent 20% 40% 60% 80% 100%

1. Measles 95 28.70%

2. Mumps 75 22.66%

3. Rubella 19 5.74%

4. Hepatitis 7 2.11%

5. Diphtherta 0 0.00%

6. Varicella 3 0.91%

7. Tetanus 2 0.60%

8. Chicken Pox 114 34.44%

9. Scarlet Fever 11 3.32%

10. Yellow fever 0 0.00%

11. Other 5 1.51%

Total 331 100%
Mean : 4.314 ! Confidence Interval @ 95% : [3.963 - 4.666] Standard Deviation : 3.264 Standard Error : 0.179



What type of operations have you had?
Answer Count Percent 20% 40% 60% 80% 100%

1. Head 4 2.00%

2. Neck 9 4.50%

3. Back 8 4.00%

4. Shoulder 10 5.00%

5. Arm 7 3.50%

6. Leg 27 13.50%

7. Colon 4 2.00%

8. Tonsils 50 25.00%

9. Appendix 14 7.00%

10. Gallbladder 12 6.00%

11. Other 55 27.50%

Total 200 100%
Mean : 7.810 ! Confidence Interval @ 95% : [7.416 - 8.204] Standard Deviation : 2.840 Standard Error : 0.201



Have you ever had mercury fillings in your teeth?
Answer Count Percent 20% 40% 60% 80% 100%

1. Yes 127 80.89%

2. No 30 19.11%

Total 157 100%
Mean : 1.191 ! Confidence Interval @ 95% : [1.129 - 1.253] Standard Deviation : 0.394 Standard Error : 0.031



Ever had a roof canal?
Answer Count Percent 20% 40% 60% 80% 100%

1. Yes 90 55.90%

2. No 71 44.10%

Total 161 100%
Mean : 1.441 ! Confidence Interval @ 95% : [1.364 - 1.518] Standard Deviation : 0.498 Standard Error : 0.039



Ever had fluoride treatment on your teeth?
Answer Count Percent 20% 40% 60% 80% 100%

1. Yes 105 64.81%

2. No 57 35.19%

Total 162 100%
Mean : 1.352 ! Confidence Interval @ 95% : [1.278 - 1.426] Standard Deviation : 0.479 Standard Error : 0.038



What type vaccination's have you had?
Answer Count Percent 20% 40% 60% 80% 100%

1. All childhood 147 73.87%

2. Smallpox 32 16.08%

3. Cholera 9 4.52%

4. Anthrax 2 1.01%

5. Very few 7 3.52%

6. None 2 1.01%

Total 199 100%
Mean : 1.472 ! Confidence Interval @ 95% : [1.331 - 1.613] Standard Deviation : 1.014 Standard Error : 0.072



Ever have any head trauma?
Answer Count Percent 20% 40% 60% 80% 100%

1. Yes 73 45.34%

2. No 88 54.66%

Total 161 100%
Mean : 1.547 ! Confidence Interval @ 95% : [1.469 - 1.624] Standard Deviation : 0.499 Standard Error : 0.039



Select any of the following you have had problems with?
Answer Count Percent 20% 40% 60% 80% 100%

1. Neck 52 31.71%

2. Back 64 39.02%

3. Shoulder 39 23.78%

4. Other 9 5.49%

Total 164 100%
Mean : 2.030 ! Confidence Interval @ 95% : [1.895 - 2.166] Standard Deviation : 0.882 Standard Error : 0.069



Ever have problems with any of the following?
Answer Count Percent 20% 40% 60% 80% 100%

1. Colon 9 56.25%

2. Liver 7 43.75%

Total 16 100%
Mean : 1.438 ! Confidence Interval @ 95% : [1.186 - 1.689] Standard Deviation : 0.512 Standard Error : 0.128



Ever have any of the following?
Answer Count Percent 20% 40% 60% 80% 100%

1. Chronic Constipation 15 25.00%

2. Diarrhea 27 45.00%

3. Irritable bowel syndrome 18 30.00%

Total 60 100%
Mean : 2.050 ! Confidence Interval @ 95% : [1.861 - 2.239] Standard Deviation : 0.746 Standard Error : 0.096



Ever have the flu?
Answer Count Percent 20% 40% 60% 80% 100%

1. Yes 150 93.75%

2. No 10 6.25%

Total 160 100%
Mean : 1.062 ! Confidence Interval @ 95% : [1.025 - 1.100] Standard Deviation : 0.243 Standard Error : 0.019



Ever have sinues problems?
Answer Count Percent 20% 40% 60% 80% 100%

1. Yes 85 53.46%

2. No 74 46.54%

Total 159 100%
Mean : 1.465 ! Confidence Interval @ 95% : [1.388 - 1.543] Standard Deviation : 0.500 Standard Error : 0.040



Ever had asthma?
Answer Count Percent 20% 40% 60% 80% 100%

1. Yes 25 15.53%

2. No 136 84.47%

Total 161 100%
Mean : 1.845 ! Confidence Interval @ 95% : [1.789 - 1.901] Standard Deviation : 0.363 Standard Error : 0.029



Ever had hay fever?
Answer Count Percent 20% 40% 60% 80% 100%

1. Yes 60 37.50%

2. No 100 62.50%

Total 160 100%
Mean : 1.625 ! Confidence Interval @ 95% : [1.550 - 1.700] Standard Deviation : 0.486 Standard Error : 0.038



Ever have dry scalp problems?
Answer Count Percent 20% 40% 60% 80% 100%

1. Yes 62 38.75%

2. No 98 61.25%

Total 160 100%
Mean : 1.612 ! Confidence Interval @ 95% : [1.537 - 1.688] Standard Deviation : 0.489 Standard Error : 0.039



Any reoccuring rashes?
Answer Count Percent 20% 40% 60% 80% 100%

1. Yes 48 30.00%

2. No 112 70.00%

Total 160 100%
Mean : 1.700 ! Confidence Interval @ 95% : [1.629 - 1.771] Standard Deviation : 0.460 Standard Error : 0.036



Did you play sports while you were in school?
Answer Count Percent 20% 40% 60% 80% 100%

1. Yes 94 58.39%

2. No 67 41.61%

Total 161 100%
Mean : 1.416 ! Confidence Interval @ 95% : [1.340 - 1.493] Standard Deviation : 0.494 Standard Error : 0.039



Have you been athletic or active most of your live prior to diagnosis?
Answer Count Percent 20% 40% 60% 80% 100%

1. Yes 129 80.62%

2. No 31 19.38%

Total 160 100%
Mean : 1.194 ! Confidence Interval @ 95% : [1.132 - 1.255] Standard Deviation : 0.396 Standard Error : 0.031



Which best describes your weight prior to diagnosis?
Answer Count Percent 20% 40% 60% 80% 100%

1. Overweight 36 22.22%

2. Underweight 13 8.02%

3. Average 113 69.75%

Total 162 100%
Mean : 2.475 ! Confidence Interval @ 95% : [2.347 - 2.604] Standard Deviation : 0.836 Standard Error : 0.066



Was your life prior to diagnosis stressful?
Answer Count Percent 20% 40% 60% 80% 100%

1. Somewhat 75 47.47%

2. A lot 66 41.77%

3. Not at all 17 10.76%

Total 158 100%
Mean : 1.633 ! Confidence Interval @ 95% : [1.528 - 1.738] Standard Deviation : 0.671 Standard Error : 0.053



How much water did you drink a day prior to diagnosis?
Answer Count Percent 20% 40% 60% 80% 100%

1. Very little or none 36 22.22%

2. 4 or less a day 74 45.68%

3. 5 - 7 glasses a day 36 22.22%

4. 8 or more glasses a day 16 9.88%

Total 162 100%
Mean : 2.198 ! Confidence Interval @ 95% : [2.059 - 2.336] Standard Deviation : 0.897 Standard Error : 0.071



How much coffee did you drink a day?
Answer Count Percent 20% 40% 60% 80% 100%

1. 1 cup a day 33 20.50%

2. 2 cups or more a day 101 62.73%

3. None 27 16.77%

Total 161 100%
Mean : 1.963 ! Confidence Interval @ 95% : [1.868 - 2.057] Standard Deviation : 0.611 Standard Error : 0.048



How much cola's or soft drinks did you drink a day?
Answer Count Percent 20% 40% 60% 80% 100%

1. 1 72 65.45%

2. 2 17 15.45%

3. 3 10 9.09%

4. 4 or more 11 10.00%

Total 110 100%
Mean : 1.636 ! Confidence Interval @ 95% : [1.447 - 1.825] Standard Deviation : 1.011 Standard Error : 0.096



Type of soft drinks?
Answer Count Percent 20% 40% 60% 80% 100%

1. Diet 39 26.53%

2. Regular 42 28.57%

3. Some of both 23 15.65%

4. None 43 29.25%

Total 147 100%
Mean : 2.476 ! Confidence Interval @ 95% : [2.287 - 2.666] Standard Deviation : 1.172 Standard Error : 0.097



How much sugar did you use per day?
Answer Count Percent 20% 40% 60% 80% 100%

1. Lots 33 20.37%

2. Very little 129 79.63%

Total 162 100%
Mean : 1.796 ! Confidence Interval @ 95% : [1.734 - 1.859] Standard Deviation : 0.404 Standard Error : 0.032



How much salt did you add to your food per day?
Answer Count Percent 20% 40% 60% 80% 100%

1. Lots 29 17.90%

2. Very little 133 82.10%

Total 162 100%
Mean : 1.821 ! Confidence Interval @ 95% : [1.762 - 1.880] Standard Deviation : 0.385 Standard Error : 0.030



How much bread did you eat a day?
Answer Count Percent 20% 40% 60% 80% 100%

1. 1 slice 47 30.72%

2. 2 slices or more 106 69.28%

Total 153 100%
Mean : 1.693 ! Confidence Interval @ 95% : [1.619 - 1.766] Standard Deviation : 0.463 Standard Error : 0.037



What type of bread did you eat?
Answer Count Percent 20% 40% 60% 80% 100%

1. Whole wheat 98 62.42%

2. White 45 28.66%

3. Other 14 8.92%

Total 157 100%
Mean : 1.465 ! Confidence Interval @ 95% : [1.362 - 1.568] Standard Deviation : 0.656 Standard Error : 0.052



Did you eat much candy?
Answer Count Percent 20% 40% 60% 80% 100%

1. Yes 47 29.38%

2. No 44 27.50%

3. Very little 69 43.12%

Total 160 100%
Mean : 2.138 ! Confidence Interval @ 95% : [2.007 - 2.268] Standard Deviation : 0.843 Standard Error : 0.067



Did you eat a lot of fried food?
Answer Count Percent 20% 40% 60% 80% 100%

1. Yes 55 34.81%

2. No 47 29.75%

3. Very little 56 35.44%

Total 158 100%
Mean : 2.006 ! Confidence Interval @ 95% : [1.875 - 2.137] Standard Deviation : 0.841 Standard Error : 0.067



Did you eat a lot of processed meat?
Answer Count Percent 20% 40% 60% 80% 100%

1. Yes 49 30.63%

2. No 48 30.00%

3. Very little 63 39.38%

Total 160 100%
Mean : 2.088 ! Confidence Interval @ 95% : [1.958 - 2.217] Standard Deviation : 0.835 Standard Error : 0.066



Did you eat a lot of hard cheese?
Answer Count Percent 20% 40% 60% 80% 100%

1. Yes 76 47.80%

2. No 32 20.13%

3. Very little 51 32.08%

Total 159 100%
Mean : 1.843 ! Confidence Interval @ 95% : [1.706 - 1.980] Standard Deviation : 0.883 Standard Error : 0.070



Did you eat a lot of soft cheese?
Answer Count Percent 20% 40% 60% 80% 100%

1. Yes 51 31.87%

2. No 50 31.25%

3. Very little 59 36.88%

Total 160 100%
Mean : 2.050 ! Confidence Interval @ 95% : [1.921 - 2.179] Standard Deviation : 0.830 Standard Error : 0.066



How often did you eat out at restaurants?
Answer Count Percent 20% 40% 60% 80% 100%

1. Once a week 99 67.35%

2. Three or more times a week 48 32.65%

Total 147 100%
Mean : 1.327 ! Confidence Interval @ 95% : [1.250 - 1.403] Standard Deviation : 0.471 Standard Error : 0.039



Did you eat a lot of prepared foods from the stores?
Answer Count Percent 20% 40% 60% 80% 100%

1. Yes 46 28.93%

2. No 113 71.07%

Total 159 100%
Mean : 1.711 ! Confidence Interval @ 95% : [1.640 - 1.781] Standard Deviation : 0.455 Standard Error : 0.036



What type of cooking pans did you use?
Answer Count Percent 20% 40% 60% 80% 100%

1. Aluminum 27 17.20%

2. Teflon coated 92 58.60%

3. Other 38 24.20%

Total 157 100%
Mean : 2.070 ! Confidence Interval @ 95% : [1.970 - 2.170] Standard Deviation : 0.642 Standard Error : 0.051



Did you ever have a lot of acid reflux problems?
Answer Count Percent 20% 40% 60% 80% 100%

1. Yes 46 28.93%

2. No 113 71.07%

Total 159 100%
Mean : 1.711 ! Confidence Interval @ 95% : [1.640 - 1.781] Standard Deviation : 0.455 Standard Error : 0.036



Did you take vitamins every day?
Answer Count Percent 20% 40% 60% 80% 100%

1. Yes 61 38.12%

2. No 51 31.87%

3. Sometimes 48 30.00%

Total 160 100%
Mean : 1.919 ! Confidence Interval @ 95% : [1.791 - 2.046] Standard Deviation : 0.824 Standard Error : 0.065



Did you take mineral supplements?
Answer Count Percent 20% 40% 60% 80% 100%

1. Yes 40 25.00%

2. No 80 50.00%

3. Sometimes 40 25.00%

Total 160 100%
Mean : 2.000 ! Confidence Interval @ 95% : [1.890 - 2.110] Standard Deviation : 0.709 Standard Error : 0.056



Have you ever been on any long term medicines?
Answer Count Percent 20% 40% 60% 80% 100%

1. Yes 72 45.28%

2. No 87 54.72%

Total 159 100%
Mean : 1.547 ! Confidence Interval @ 95% : [1.470 - 1.625] Standard Deviation : 0.499 Standard Error : 0.040



Have you ever taken statin drugs?
Answer Count Percent 20% 40% 60% 80% 100%

1. Yes 36 23.53%

2. No 117 76.47%

Total 153 100%
Mean : 1.765 ! Confidence Interval @ 95% : [1.697 - 1.832] Standard Deviation : 0.426 Standard Error : 0.034



Are you allergic to any medicine or drugs?
Answer Count Percent 20% 40% 60% 80% 100%

1. Yes 41 25.62%

2. No 119 74.38%

Total 160 100%
Mean : 1.744 ! Confidence Interval @ 95% : [1.676 - 1.812] Standard Deviation : 0.438 Standard Error : 0.035
 
Howdy, interesting. I just read the results and I'm not sure what to say except I had a problem with "a lot". One person's definition of "a lot" maybe be nothing compared to someone else's and it's really hard to make any conclusions on those questions when no actual quantities are listed.

I think that may have been some of the cause of your drop outs, too many of those personal judgement calls.

I applaud your effort and hope someone can make some use of it. And Yes I did take the survey.
 
I'm going to give everyone a day or two to look at the results before I post what I think about the results.
 
I'm going to bump this up so everyone can see it.
 
No "smoking gun" that I can see. I wish someone would figure als out because we'd all like to have the cure! When I was first diagnosed I read everything I could about it to determine if any of my experiences may have contributed. It seems like a total mystery.
 
I will try to post this week end what I see in the suevey.
 
I believe that the survey shows that approx. 90% of PALS were not drinking enough wather. The problem with not drinking enough water is your body cannot get rid of toxins. We are subjected to toxins thru the environment, the food we eat and drink and many other areas. Your body needs water to dilute and get rid to them. There are approx. 30 heavy metals, such as mercury, lead and etc, plus over 35,000 pesticides, herbicides and other pollutants. Many are fat-soluble which accumulate in our fat, liver and brain until they reach toxic levels. With out enought water our bodies can't get rid of these toxins. If you have toxins in your body, it will hold onto fat and water to try and dilute them. Excess fat can cause chemical changes in your DNA that can lead to diseases. Genetic's and environment can both cause inflammation, also poor diet and stress can cause inflammation. All this can change the genetic make up of your body. It can play a role as
to when some genes are turned on or off and how loud they are expressed. If we look at the survey we see that approx. 90% also had
some or a lot of stress in there lives. Just looking at the news will give you stress. I know what you are going to say. That his doesn't prove anything. No it doesn't but I think that it should be looked at farther. Some of you will also say that other people don't drink enough water and they didn't get ALS. No but they may not have the right combination of toxins, stress, inflammation or other factors to trigger ALS. They may have other health problems. Over 1/2 of all Americans have at least one major health problem and 60 million have 2 or more. Some will say they drink alot of coffee, tea, or cola's. The trouble with caffeine drinks is they are dirutis's and will take out more water than they contain. Yes you do get a litte water from the food you eat. A person that is 128 lb should drink 8 or more glasses of water, if you are 200 lb it should be 12 or more glasses a day. Also did you know that caffeine is classified as a neurotoxin. I'm going to list the top 10 neurotoxins, there are over 1176 known neurotoxins.
Aspartame
Monosodium Glutamate
Sucralose
Metallic Aluminum
Mercury
Fluroide
Hydrolyzed Vegetable protein
Calcium Caseinate
Sodium Caseinate
Yeast Extract
The survey did not show what toxins are involved but I think that food, water, diet or lack of proper diet along with one or more environmental toxins cause ALS. I know there are other areas that need to be looked at also.
 
I'm going to research the I tems that are shown very high on the survey if anyone wants to help me let me know.
 
I think people with a lot of stress in their lives from work to being very active could be a factor of ALS. The people I know who have it are very active (marathon runners, cyclists) very stressed (high paying jobs with lots of stress). As a side note, I'm going to say that those of you who have ALS seem to be the nicest, giving, loving people that I know and it is so sad that it has to get to those people that we need to keep on earth longer. Why should they be the ones that suffer?
 
The last I looked 202 PALS had filled out the survey.
 
tande- Ive noticed too that lots of our PALS are the bestest people in the wide world- but i may burst your bubble on this one...
im not so sure all of our PALS were this way before diagnosis. Being diagnosed with a potentially fatal disease changes who you are.
Not trying to take away from any of the goodness of my lovely PALS here, but I dont think this disease strikes just the besties...
ive known a few who arent so nice... nough said.
 
Howdy, please don't post the results this way again. It's hell scrolling all the way down when having limited abilities.

AL.
 
Sorry AL I never could find an edit button to change anything. You may remove it if you want to.
 
Wow, thanks for posting those results, Howdy! I've been a bit suspicious about the water intake as well; Gem's always been on my case about drinking more water. I know it seems like such a simple thing, but like you say, we use water to flush out our systems.
 
Interesting survey, but I don't see how drinking or not drinking water can be extracted from this; and not all of our public drinking water is the same, and in some areas its not that good. Obviously there are multiple triggers that somehow get turned on (for lack of a better term) in us... but I've always had a high water intake.

I still have my one diet soda a day, but I would love to get rid of all the aspartame in it. I remember reading somewhere that aspartame was not approved for years by the FDA, until Reagan got into office; he got rid of the FDA "chief" and aspartame was pushed through approval right away. Just saying...!

Thanks for the survey, I'm going to copy it and look at it closer. Does anyone want a pdf of this posted if I get ambitious?
 
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