Old 10-11-2006, 08:40 PM #1 (permalink)
New Member (Say Hi)
 
Join Date: 2006
City: 2921 KINGSGATE DR
State: IDAHO
Country: CANYON
Interest: I have been diagnosed with ALS.
Posts: 2
barbstavern is on a distinguished road
barbstavern barbstavern is offline
New Member (Say Hi)
Join Date: 2006
City: 2921 KINGSGATE DR
State: IDAHO
Country: CANYON
Interest: I have been diagnosed with ALS.
Posts: 2
barbstavern is on a distinguished road
Default als and muscles

can you build muscle if you have als?
barbstavern is offline  
Old 10-11-2006, 08:45 PM #2 (permalink)
New Member
 
Join Date: 2006
City: NRH
State: Texas
Country: US
Interest: I have been diagnosed with ALS.
Posts: 10
Hornvictory is on a distinguished road
Hornvictory Hornvictory is offline
New Member
Join Date: 2006
City: NRH
State: Texas
Country: US
Interest: I have been diagnosed with ALS.
Posts: 10
Hornvictory is on a distinguished road
Default

I do not think so. What if you take muscle building supplements (creatine, glutamine, amino acids, etc) How about HGH, Andro, or Anabolic steroids?
Hornvictory is offline  
Old 10-11-2006, 08:50 PM #3 (permalink)
New Member (Say Hi)
 
Join Date: 2006
City: Worthington
State: Ohio
Country: US
Interest: I have been diagnosed with ALS.
Posts: 8
fl4ian is on a distinguished road
fl4ian fl4ian is offline
New Member (Say Hi)
Join Date: 2006
City: Worthington
State: Ohio
Country: US
Interest: I have been diagnosed with ALS.
Posts: 8
fl4ian is on a distinguished road
Default

from my understanding, any use of muscles depeletes their capacity, and so building muscle by weight lifting or otherwise exercising would not work. i don't know that the supplements and roids would work if they weren't in used in combination with exercise, but i may stand corrected.
fl4ian is offline  
Old 10-12-2006, 01:02 AM #4 (permalink)
BWk BWk is offline
Member
 
Join Date: 2006
City: silver city
State: new mexico
Country: grant
Interest: I have been diagnosed with ALS.
Posts: 113
BWk is on a distinguished road
BWk BWk is offline
Member
Join Date: 2006
City: silver city
State: new mexico
Country: grant
Interest: I have been diagnosed with ALS.
Posts: 113
BWk is on a distinguished road
Default Hello new members

From eveything I've read and from my own exp. light exercise is the best route to go, don't overtax what you have left. I find if I exercise at least some everyday I feel much better.Walking is good also if your still able to. It helps mentally also to do some exercise [at least for me]. I don't think you can build muscle with als. Barry
BWk is offline  
Old 10-12-2006, 01:11 AM #5 (permalink)
Al's Avatar
Moderator
Forum Moderator
 
Join Date: 2004
City: NW of Toronto
State: On
Country: CAN
Diagnosed: 10/2003
Interest: I have been diagnosed with ALS.
Posts: 8,028
Al is on a distinguished road
♥ Al Al is offline
Moderator
Forum Moderator

Al's Avatar
Join Date: 2004
City: NW of Toronto
State: On
Country: CAN
Diagnosed: 10/2003
Interest: I have been diagnosed with ALS.
Posts: 8,028
Al is on a distinguished road
Default

It is my understanding that once you get ALS your muscle will not develop because the message is not getting to them to tell them to rebuild. I have noticed that my right hand is weaker than my left now so I would think that I have used and abused it more and it's now worse than the other.
Al is offline  
Old 10-12-2006, 07:25 AM #6 (permalink)
Moderator
Forum Moderator
 
Join Date: 2006
City: Anytown
State: New England
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 3,564
CindyM is on a distinguished road
CindyM CindyM is offline
Moderator
Forum Moderator

Join Date: 2006
City: Anytown
State: New England
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 3,564
CindyM is on a distinguished road
Default

Is that why Brentt's DR told him not to exercise? Because you don't want to tax what muscles you have left? Before we thought I might have this disease, they found a pinched nerve in my neck and I was sent to PT. But after 5 weeks of PT, I was getting weak and the therapist told me he didn't want to continue and he asked me to get a second opinion. After that experience, I began to suspect that strong exercise is not always good.

Everyone says to stretch, as it helps stiff muscles. I haven't experienced any stiffness yet except if I am on the computer too long my hand cramps up and I have to open my fingers with the other hand. So let me ask everybody: when does the stiffness set in? Is it after you loose most of the muscles in a limb? After the fasciculations go away? (Do they go away?)
CindyM is offline  
Old 10-12-2006, 10:26 AM #7 (permalink)
New Member
 
Join Date: 2006
City: naples
State: florida
Country: US
Interest: I have been diagnosed with ALS.
Posts: 55
Brentt is on a distinguished road
Brentt Brentt is offline
New Member
Join Date: 2006
City: naples
State: florida
Country: US
Interest: I have been diagnosed with ALS.
Posts: 55
Brentt is on a distinguished road
Default

Hi Cindy
I used to train with weights .I trained for strength to play semi pro football. I used natural supplements to build muscle .Protein, creatine and amino acids .You can only gain 5 pounds of muscle a year naturally .After the diagnosed I tried to gain back strength even though I was told not to .It didn't take long for me to find out how wrong I was . I realized that I was losing strength rapidly in the left arm instead of gaining it back .The rest of my body gained strength but my arm just wouldn't get stronger .That was over a 3 month period .In the gym 6 days a week . My routines were always rigerouse and stopping the training was very difficult for me .The only thing I can do is stretch to keep my muscles from cramping .It also helps to keep ligaments loose so they don't get seized up in the joints .Now I can't use my arms or my legs . The flaciculations continue but ALS affects everybody differently .I think when you stop using your appendages they begin to get tight and that's when it becomes good to stretch . It won't hurt to begin stretching now .I could talk for hours about the muscle thing and what works to comfort me . I will help any way I can .Brentt.
Brentt is offline  
Old 10-12-2006, 11:04 AM #8 (permalink)
rcharlton's Avatar
Senior Member
Forum Moderator
 
Join Date: 2005
City: Toronto
State: Ontario
Country: CA
Diagnosed: 11/2005
Interest: I have been diagnosed with ALS.
Posts: 616
rcharlton is on a distinguished road
rcharlton rcharlton is offline
Senior Member
Forum Moderator

rcharlton's Avatar
Join Date: 2005
City: Toronto
State: Ontario
Country: CA
Diagnosed: 11/2005
Interest: I have been diagnosed with ALS.
Posts: 616
rcharlton is on a distinguished road
Default

For those muscles affected by ALS - I don't think there is any point trying to do strength training.

However, for other muscles unaffected by ALS - you can still build muscle. My legs are so far unaffected. I still commute to work a few days a week - it's 47km (30 miles) round trip. I recently switched to a recumbent bike which uses a different muscle group than a regular bike. Initially I was a lot slower but now my commute time is down 20-30 minutes and my average speed is up 5-10kms/hr. So I've definately build muscle in my legs.
rcharlton is offline  
Old 10-12-2006, 12:34 PM #9 (permalink)
New Member (Say Hi)
 
Join Date: 2006
City: 2921 KINGSGATE DR
State: IDAHO
Country: CANYON
Interest: I have been diagnosed with ALS.
Posts: 2
barbstavern is on a distinguished road
barbstavern barbstavern is offline
New Member (Say Hi)
Join Date: 2006
City: 2921 KINGSGATE DR
State: IDAHO
Country: CANYON
Interest: I have been diagnosed with ALS.
Posts: 2
barbstavern is on a distinguished road
Default

thank you all. in oct of 05 i when to the mayo clinic in az. and was told that i have als.they said i needed to go back home and find a doc that i had 3to 5 years. thank you very much. in feb 0f 06 i fell and broke my hip(not because of als). i lost a lot of muscle. went yo a pt for 6 weeks. what muscle i lost i got back. i ask them at the clinic if i could of had a stroke? and they said no did they run any test no. they had to put a name on it so they gave als.how nice.it has been a year and not one thing has change. if an thing i am better.any way thank you . all of you have been a grate help. god bless. barbtavern
barbstavern is offline  
Old 10-12-2006, 08:17 PM #10 (permalink)
New Member
 
Join Date: 2006
City: naples
State: florida
Country: US
Interest: I have been diagnosed with ALS.
Posts: 55
Brentt is on a distinguished road
Brentt Brentt is offline
New Member
Join Date: 2006
City: naples
State: florida
Country: US
Interest: I have been diagnosed with ALS.
Posts: 55
Brentt is on a distinguished road
Default

Don't buy the 3 to 5 years thing .It's not the same with everyone. You can survive if you can get the right types of support .Lungs and food supplementation are the 2 big things that can both be helpful to outliving this blasted disease. My lungs started to get weak and I could not sleep lying on my side or my back. I was put on a bipap at night to help me breath.It was like a breath of fresh air.I have been using it for 10 months now and my lungs have not decreased in capacity since then.If you gather more information you'll see that there are things that help prolong life and make it comfortable at that . Try the loaner closets in your local ALS support communities for your needs .I got lucky and found a chair in one day .I have heard of plenty of others getting things that they needed. Also check out medicare if you don't have it and need insurance and money ALS is immediate coverage .So if you need to get medical things like a feeding tube or a bipap they cover it .Having insurance is so crucial. MDA will also help .
Brentt is offline  
Old 07-24-2009, 02:55 PM #11 (permalink)
gregdickerson's Avatar
New Member
 
Join Date: 2009
City: Southern Shores
State: NC
Country: US
Diagnosed: 09/2009
Interest: Diagnosed MMN/suspect ALS
Posts: 18
gregdickerson is on a distinguished road
gregdickerson gregdickerson is offline
New Member
gregdickerson's Avatar
Join Date: 2009
City: Southern Shores
State: NC
Country: US
Diagnosed: 09/2009
Interest: Diagnosed MMN/suspect ALS
Posts: 18
gregdickerson is on a distinguished road
Default

Brentt,
Did you experience excessive sorness after workouts as you were losing strength?
gregdickerson is offline  
Old 07-24-2009, 05:33 PM #12 (permalink)
BethU's Avatar
Extremely Helpful Member
 
Join Date: 2008
City: Los Angeles
State: California
Country: US
Diagnosed: 05/2008
Interest: I have been diagnosed with ALS.
Posts: 2,661
BethU is on a distinguished road
BethU BethU is offline
Extremely Helpful Member
BethU's Avatar
Join Date: 2008
City: Los Angeles
State: California
Country: US
Diagnosed: 05/2008
Interest: I have been diagnosed with ALS.
Posts: 2,661
BethU is on a distinguished road
Default

After the diagnosed I tried to gain back strength even though I was told not to .It didn't take long for me to find out how wrong I was . I realized that I was losing strength rapidly in the left arm instead of gaining it back

My neuro (and PT) told me that we build muscle by stressing the muscle, temporarily weakening it. In normal circumstances, the muscle rebounds stronger than before. But with ALS, when you stress and weaken a muscle, it remains in the weakened state. There is no rebound. So, instead of building muscle you are tearing it down, and hastening the body's deterioration.

Any muscles that are unaffected by ALS can still be strengthened by exercise, but you have to be careful, because sometimes the ALS process is going on in areas you are unaware of.
BethU is offline  
Closed Thread

Tags
als, als?, muscle, muscles


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Pulling muscles Mike in Maine General Discussion About PLS 19 09-11-2014 05:15 PM
twitching muscles zac111 Do I Have ALS? Is This ALS? 7 02-21-2012 11:23 PM
craming muscles... BeckyW People With ALS - "PALS" 9 06-29-2011 10:12 PM
is all muscles effected? smwelder General Discussion About PLS 16 03-13-2011 11:25 PM
Tense Muscles michelleG Do I Have ALS? Is This ALS? 6 03-07-2011 11:11 PM
Pelvic Muscles? scaredals Do I Have ALS? Is This ALS? 9 03-01-2011 05:00 PM
When the neck muscles go APL55 General Discussion About ALS/MND 2 10-21-2010 03:51 PM
Muscles Lavender Lady People With ALS - "PALS" 27 10-10-2010 12:12 PM
Shoulder Muscles And PLS Zaphoon General Discussion About PLS 16 12-04-2009 03:10 PM
ALS and muscles 4rhl1981 General Discussion About ALS/MND 2 01-05-2008 02:21 PM


All times are GMT -5. The time now is 06:44 PM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016