Old 02-13-2011, 02:01 AM #1 (permalink)
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Default Hunched back position in ALS?

Hi,

I'd like to know if advanced ALS patients usually are hunched back, like their shoulders are pulled forward? One of my uncles has many symptoms that make me suspect ALS (extreme loss weight, out of breath when he talks, fasciculations all over his body, cramping, twitches, extreme fatigue & weakness).

I just saw him today and his center of gravity is not what it normally was, his shoulders and upper torso look like they are being pulled forward.

He's 70 but he looks like he's 90, he's so skinny and weak. It breaks my heart to see him this way. He saw many specialists and no one has mentioned ALS. He had a Lyme test done and it came back positive. I know a few people who's Lyme eventually turned into ALS. When it's addressed quickly with antibiotics, the progression of Lyme-induced ALS can sometimes be halted, but not in advanced cases, and I fear my uncle's condition is progressing very fast.

Thanks for your input,

Julie

PS: English is not my mother tongue, so pardon my weird syntax.
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Old 02-13-2011, 02:07 AM #2 (permalink)
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Default Re: Hunched back position in ALS?

An interesting read about Lyme-induced ALS: ALS then Lyme diagnosis, But Dr. David Martz knew whatever he had was worse than the flu.
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Old 02-13-2011, 07:22 AM #3 (permalink)
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Default Re: Hunched back position in ALS?

Hi Julie,

Your Uncle has lost a lot of trunk and neck strength. He needs to sit in a wheelchair that tilts or in a recliner. You are right about the body tilting forward (or sideways) without support. I'm so sorry for his Lyme Disease--it must be miserable for him. It does sound advanced.
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Old 02-13-2011, 01:46 PM #4 (permalink)
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Default Re: Hunched back position in ALS?

Thank you very much for your reply.

Julie
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Old 02-13-2011, 02:16 PM #5 (permalink)
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Default Re: Hunched back position in ALS?

Julie, you're welcome--I wish I could tell you something that would help him, and am so very sorry for his condition. And, your English is very good.

I hope he is able to get the right kind of wheelchair to make him more comfortable.

Ann
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