Unread 10-02-2006, 04:28 PM #1 (permalink)
New Member (Say Hi)
 
Join Date: 2006
City: Spokane
State: WA
Country: US
Interest: I have been diagnosed with ALS.
Posts: 1
Friend is on a distinguished road
Friend Friend is offline
New Member (Say Hi)
Join Date: 2006
City: Spokane
State: WA
Country: US
Interest: I have been diagnosed with ALS.
Posts: 1
Friend is on a distinguished road
Default ALS Specialists in the Pacific Northwest?

Hello,

I am new to your site.

One of my closest friend's was diagnosed a few days ago with ALS. She's been experiencing ascending paralysis, weakness in her legs for several weeks now, and has been tested for so many different things.

I have no experience with ALS, but faced cancer myself, and found that public forums often offered me help I couldn't get from my doctors.

I've been researching online for her, since her computer access is limited.

I would really like her to see a specialist in ALS, at least for a second opinion, and advice. SO, what I'm hoping for is advice on the best ALS doctors and how to find them.

She's currently living in Oregon, but will likely be moving to North Idaho soon, so I'm searching for someone in Oregon, Washington, Idaho or Western Montana.

I'd appreciate any recommendations you all could give, or ideas on how I can find out which doctors in our area might be specialists.

thank you
Friend is offline  
Unread 10-02-2006, 04:47 PM #2 (permalink)
Al's Avatar
Moderator
Forum Moderator
 
Join Date: 2004
City: NW of Toronto
State: On
Country: CAN
Diagnosed: 10/2003
Interest: I have been diagnosed with ALS.
Posts: 8,030
Al is on a distinguished road
♥ Al Al is offline
Moderator
Forum Moderator

Al's Avatar
Join Date: 2004
City: NW of Toronto
State: On
Country: CAN
Diagnosed: 10/2003
Interest: I have been diagnosed with ALS.
Posts: 8,030
Al is on a distinguished road
Default

Hi friend. Welcome to our group. Sorry to hear about your friend. We have a few members from Oregon and Washington so it may take a couple of days for them to read your message and reply so don't give up hope. If you have any other questions just ask. AL.
Al is offline  
Unread 10-02-2006, 05:38 PM #3 (permalink)
New Member
 
Join Date: 2006
City: FEDERAL WAY
State: WA
Country: US
Interest: I have been diagnosed with ALS.
Posts: 86
TRACY22 is on a distinguished road
TRACY22 TRACY22 is offline
New Member
Join Date: 2006
City: FEDERAL WAY
State: WA
Country: US
Interest: I have been diagnosed with ALS.
Posts: 86
TRACY22 is on a distinguished road
Default Seattle

Virginia Mason ALS clinic

https://www.virginiamason.org/body.cfm?id=714

http://www.alsa.org/news/article.cfm?id=966
TRACY22 is offline  
Unread 10-03-2006, 03:17 PM #4 (permalink)
Member
 
Join Date: 2006
Posts: 120
COlisa is on a distinguished road
COlisa COlisa is offline
Member
Join Date: 2006
Posts: 120
COlisa is on a distinguished road
Default

Hi All,
Here is a follow up thought regarding ALS specialists & 2nd/3rd opinions:

Does it make more sense to go to an ALS clinc or to someplace that specalized in neurology overall for 2nd or 3rd opinion?

The experience that my husband had was 1st neuro said PBP, probable ALS. 2nd neuro at ALS center looked at the chart, did a neuro exam and agreed. I did not feel like he looked for alternative diagnosis, and just confirmed that the 1st neuro had not messed up totally. It seems that by going to ALS center for a confirmed diagnosed that they will LOOK for ALS and not for alternative explanations.

So.....we are considering a totally objective 3rd opinion at some place that is known for overall neurology, not just ALS.

Does it make any sense or am I just paranoid?

COLisa
COlisa is offline  
Unread 10-04-2006, 02:55 AM #5 (permalink)
Al's Avatar
Moderator
Forum Moderator
 
Join Date: 2004
City: NW of Toronto
State: On
Country: CAN
Diagnosed: 10/2003
Interest: I have been diagnosed with ALS.
Posts: 8,030
Al is on a distinguished road
♥ Al Al is offline
Moderator
Forum Moderator

Al's Avatar
Join Date: 2004
City: NW of Toronto
State: On
Country: CAN
Diagnosed: 10/2003
Interest: I have been diagnosed with ALS.
Posts: 8,030
Al is on a distinguished road
Default

No I don't think you are being paranoid. For my fourth opinion my Neuro (ALS Specialist) sent me to a Clinical Diagnostician Neurologist specializing in Neurological disorders of all types. He did all the tests himself again rather than just looking at the other 3 sets and came to his own conclusion. He did basically agree with the guy who sent me there. I'd go for the independent opinion. May as well have another opinion. AL.
Al is offline  
Unread 10-04-2006, 12:04 PM #6 (permalink)
Member
 
Join Date: 2006
Posts: 120
COlisa is on a distinguished road
COlisa COlisa is offline
Member
Join Date: 2006
Posts: 120
COlisa is on a distinguished road
Default

Thanks Al! My intuition tells me that that this is the right thing to do.

Now if we can just get the insurance company to agree.......

COLisa
COlisa is offline  
Closed Thread

Tags
advice, als, computer access, diagnosed, friend, montana, paralysis, second opinion, weakness, wes



Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Good doctors in the pacific north west mohatovilaw General Discussion About ALS/MND 4 05-15-2015 10:46 PM
How many think the specialists care? AuntSilly Rants & Raves 6 07-06-2014 05:31 PM
Advice on FTD & ALS specialists in AZ? Cereus ALS and FTD 7 02-28-2010 08:02 AM
ALS Specialists In Denver - Next Steps mcdillydog Do I Have ALS? Is This ALS? 15 02-13-2009 11:59 AM


All times are GMT -5. The time now is 05:32 AM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016