ALS advocacy thoughts? Please chime in.

[rknt50a]

We just put up a survey to give grass-roots people a chance to share their thoughts and ideas on ALS advocacy.

The survey will take about 15 minutes to complete. There is some very general demographic information followed by ten sets of issues from the recent ALSA advocacy listening tour. There is a final page with a few questions to get your vision for advocacy success in 2011, etc.

I hope that people who are interested in ALS advocacy will take a few minutes and chime in. It seemed like a lot of people interested in advocacy had not been a part of the recent ALSA listening tour, so here's a chance to chime in. We will post summary results and will share with ALSA, ALS TDI, and MDA advocacy departments.

Thanks, all!

 

[rknt50a]

Thanks for all who took the time to chime in.

Results are available at

ALS Advocacy: ALS Advocacy Survey Results Are Available

Clearly a lot of voices had not been heard by the ALSA Listening Tour. Results have been sent to ALSA, ALS TDI, and MDA advocacy departments.