Old 12-09-2010, 10:19 PM #1 (permalink)
New Member
 
Join Date: 2010
City: roanoke
State: virginia
Country: US
Interest: I am a family member of someone with ALS/MND.
Posts: 12
cperdue is on a distinguished road
cperdue cperdue is offline
New Member
Join Date: 2010
City: roanoke
State: virginia
Country: US
Interest: I am a family member of someone with ALS/MND.
Posts: 12
cperdue is on a distinguished road
Default mom diagnosed with ALS today

This is my first post to this forum, however, I have been reading these threads for a couple of months now and must say I am inspired and amazed at the strength and courage of all. God bless you all. My mother started slurring her speach back in the summer. We finally convinced her to see a doctor a couple of months ago. The neuro said today he was confident it was ALS. This was her third visit to this neuro and ALS was mentioned at the first appointment. My questions are this: 1) How can a Dr. mention such a life altering disease at first appointment only from a clinical evaluation? Is this normal? 2) The Dr. said he had NOT tested for Lyme or thyroid. Isn't this part of the normal "ruling out" out phase and should have been done before diagnosed? 3) IF this is really ALS where do I go from her. Any suggestions will be helpful.
cperdue is offline  
Old 12-09-2010, 11:29 PM #2 (permalink)
Extremely Helpful Member
 
Join Date: 2006
Country: HM
Interest: Other
Posts: 5,204
brooksea is on a very distinguished road
brooksea brooksea is offline
Extremely Helpful Member
Join Date: 2006
Country: HM
Interest: Other
Posts: 5,204
brooksea is on a very distinguished road
Default Re: mom diagnosed today

cperdue,

1) I don't think it's normal to mention ALS on the first visit. Has she seen an ALS specialist?

2) I can only tell you my husband was tested for everything under the sun, including Lyme and thyroid!

3) Back to number one: Has she been to an ALS specialist/clinic? If she does have ALS, she needs the clinic to help her acquire and understand what she will need to help her. The clinic will have all the professionals she may need to prescribe her treatment to help her
live with ALS, all in one visit.

I hope she does not have ALS!
brooksea is offline  
Old 12-09-2010, 11:55 PM #3 (permalink)
sadiemae's Avatar
Extremely Helpful Member
 
Join Date: 2009
City: Reno
State: NV
Country: US
Diagnosed: 09/2009
Interest: I lost a loved one to ALS/MND.
Posts: 2,409
sadiemae is on a very distinguished road
sadiemae sadiemae is offline
Extremely Helpful Member
sadiemae's Avatar
Join Date: 2009
City: Reno
State: NV
Country: US
Diagnosed: 09/2009
Interest: I lost a loved one to ALS/MND.
Posts: 2,409
sadiemae is on a very distinguished road
Default Re: mom diagnosed today

In our situation the Neuro confirmed she thought he had ALS after a 20 minute exam, but then said we had to have tests done to rule out anything else. Our situation was different, as he had had symptoms for a long time, but we didn't go to a doctor until I figured out it was probably ALS. I told her I thought he had ALS, and she told me I was right. We also had tons of tests done http://www.medicine.virginia.edu/cli...earchterm=ALSe.



http://www.hamptonroadsneurology.com...ide-als-clinic

Here are 2 ALS clinics in VA I found

Last edited by sadiemae : 12-10-2010 at 12:05 AM
sadiemae is offline  
Old 12-10-2010, 08:23 AM #4 (permalink)
CAHPAH's Avatar
Member
 
Join Date: 2010
City: Barnhart
State: MO
Country: US
Interest: I am the primary caregiver for my wife
Posts: 300
CAHPAH is on a distinguished road
CAHPAH CAHPAH is offline
Member
CAHPAH's Avatar
Join Date: 2010
City: Barnhart
State: MO
Country: US
Interest: I am the primary caregiver for my wife
Posts: 300
CAHPAH is on a distinguished road
Default Re: mom diagnosed today

You are correct, there are a lot of things to rule out before a diagnosed of ALS can be made. I suggest you go to an ALS clinic or at least a Neuro that has experience with ALS. Our first Neuro mentioned ALS only to say that he could asure us it was NOT ALS. Wish he had been right on that one. Best of wishes to you.
CAHPAH is offline  
Old 12-11-2010, 03:28 PM #5 (permalink)
New Member
 
Join Date: 2010
City: kyle
State: texas
Country: US
Diagnosed: 08/2000
Interest: I have been diagnosed with ALS.
Posts: 26
hope2000 is on a distinguished road
hope2000 hope2000 is offline
New Member
Join Date: 2010
City: kyle
State: texas
Country: US
Diagnosed: 08/2000
Interest: I have been diagnosed with ALS.
Posts: 26
hope2000 is on a distinguished road
Default Re: mom diagnosed with ALS today

Everyone is correct you have to have more test done and most importantly get a second opinion. It took almost two years to diagnosed me. one because doctors at baylor said there was no way I could have als I in my early 30's. but in the end It was ALS good luck with everything and you can read my story on living w/als more than 10 years. GOD BLESS YOU AND FAMILY
hope2000 is offline  
Closed Thread

Tags
als, back, clinical, diagnosed, helpful, life, lyme, questions, reading


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Diagnosed today Sibling ALS Newly Diagnosed 39 12-15-2014 10:16 PM
Diagnosed Today 9/8/2014 eworth76 Newly Diagnosed 36 09-21-2014 07:29 PM
Just Diagnosed Today 6/17/14 BlueEyesOhio7 Newly Diagnosed 75 08-13-2014 12:31 PM
Got diagnosed today Music67 Newly Diagnosed 42 06-23-2014 06:48 PM
Officially diagnosed today Laffy130 Newly Diagnosed 11 09-03-2013 09:25 PM
My mother Diagnosed today AngelaRenee General Discussion About ALS/MND 9 09-16-2012 09:26 AM
Mother diagnosed today with ALS Aimee Lee B Current Caregivers (CALS) 4 11-23-2010 10:12 PM
Help. My husband was diagnosed with ALS today. Miss Current Caregivers (CALS) 45 11-21-2010 07:34 PM
Husband just diagnosed today - what can I help him with from those who've been there? perplexed Current Caregivers (CALS) 12 02-09-2009 05:27 PM
Mom diagnosed today ronwv Current Caregivers (CALS) 11 10-18-2008 07:29 PM


All times are GMT -5. The time now is 06:38 PM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016