Old 12-07-2010, 02:37 PM #16 (permalink)
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Default Re: Anyone been involved in a sleep study

Pepper... is it possible that he is suffering from anxiety that is causing some of the sleeplessness? Might ask the hospice nurse about it.
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Old 12-07-2010, 10:47 PM #17 (permalink)
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Default Re: Anyone been involved in a sleep study

Hi Laura,
My original differential included early onset Parkinson's and MND. My GP encouraged me to have a sleep study early in the hunt for a possible explanation for my symptoms. The sleep study revealed some minor issues, so then he encouraged me to do a trial period with a c-pap to see if the symptoms were relieved. The sleep doctor (pulmonary doc?) shared that he regularly sees patients that do a trial period with a c-pap as a means of ruling out sleep disorders as the culprit behind their physical problems. In my case, after the trial period of c-pap use, a sleep disorder was ruled out as a possible cause of my problems. So I suppose, technically, it helped narrow the list of possible reasons down. I still have no diagnosed beyond a differential list, though.

Lydia
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Old 12-08-2010, 10:09 AM #18 (permalink)
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Default Re: Anyone been involved in a sleep study

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Hi Laura,
My original differential included early onset Parkinson's and MND. My GP encouraged me to have a sleep study early in the hunt for a possible explanation for my symptoms. The sleep study revealed some minor issues, so then he encouraged me to do a trial period with a c-pap to see if the symptoms were relieved. The sleep doctor (pulmonary doc?) shared that he regularly sees patients that do a trial period with a c-pap as a means of ruling out sleep disorders as the culprit behind their physical problems. In my case, after the trial period of c-pap use, a sleep disorder was ruled out as a possible cause of my problems. So I suppose, technically, it helped narrow the list of possible reasons down. I still have no diagnosed beyond a differential list, though.

Lydia
Hey Lydia,

Thanks for sharing. I am due to see a movement specialist (neurologist) at some point, haven't had a call since the referral. I was already told by a local Neuro that I didn't have Huntinton's ,Parkinsons nor did she "think" I have MS. That was very early on. She blamed my troubles on stress. I agreed to see a psychologist to rule it out and she said she would send a referral..never ever received a call. I went off work for 7 months and other than the issues I am having health wise there is little to no stress in my life. I'm not sure whether my sleeping problems are related directly to a sleeping disorder or not..but certainly I don't know of any sleeping disorders that cause episodes where I can't form words, sweat profusely and have facial paralysis on one side among other things. Perhaps the study will prove to be of similar value to me as it was to you and rule another thing out. Due to my age I haven't had anyone take my symptoms very seriously in my opinion...I hope that whatever is ailing you is not ALS but something that has a better prognosis. I would be interested in hearing what steps you and your health care providers are taking to determine a DX for what you are experiencing. Please feel free to message me! All the best, Laura
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Old 12-08-2010, 11:52 AM #19 (permalink)
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Default Re: Anyone been involved in a sleep study

hi laura . . Have just re read your initial post . . And i had exactly the same state of sleep to start with . . Constantly vivid dreams . . And never really feeling like you had got to deep sleep . . Quality of sleep is dependant on a few things but mostly how you breath. . . If it is slightly off then this is called sleep disorderd breathing. . . There are sooo many things that can cause this . -So please dont worry too much about als on the strength of this . . I wish you good luck and god bless . . Alex
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Old 12-08-2010, 02:12 PM #20 (permalink)
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Default Re: Anyone been involved in a sleep study

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hi laura . . Have just re read your initial post . . And i had exactly the same state of sleep to start with . . Constantly vivid dreams . . And never really feeling like you had got to deep sleep . . Quality of sleep is dependant on a few things but mostly how you breath. . . If it is slightly off then this is called sleep disorderd breathing. . . There are sooo many things that can cause this . -So please dont worry too much about als on the strength of this . . I wish you good luck and god bless . . Alex
Thanks Alex..as I mentioned previously I feel less and less that my problems are due to ALS, I just don't fit the common progression...at this point I feel I am more likely to be suffering from anything but..I also know that many of the PALS here have been through similar situations and have a wealth of knowledge when it comes to getting a diagnosis and that is all I am hoping for at some point, to know what is causing my problems. I realize there are many people here that are like me and most likely do not have als but there search has brought them here in hopes of learning something. I thank everyone who has offered me such sound advice thus far
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